Living with Hashimoto & Neuro Symptoms

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jimmyfour14

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Hello guys,first excuse my english, i am from europe ;)My story starts early 2010 with the diagnosis of Hashimoto T. In September my neuro symptoms start with pins and needles. I was in hospital for a weekwhere they check for MS (MRT HEAD, lumbar punch ...) , no result. In November the twitching starts in the calves and i get scared cause of google...(ALS :( )I go to my neuro and he makes a lot of tests, including EMG in my legs. No results and he says: NO ALS. Anayway i was so scared, cause the twichtchin getting stronger and some buzzing in the muscles appear.The whole leg and other parts of the body were twtiching. A vague myalgia in my legs also come out. So i went to hospital. I told them, that i was scared of ALS. They make a lot of tests includingEMG in arms and legs, no result. I went to an psychologic, cause i still was scared. THat helps me a bit, but in July 2011 i went back to my neuro.I felt weak and my twitching was still there. He made another emgin my hand and my leg, no result. THe weakness of my whole body gets stronger and in November my doctor found a big lack of vitamin D.I took vitamin D pills and its getting slightly better. But at once there was this stuffy breathing, and yeah it was Sarciodosis, stadium 1. I dont get any medics for this, cause no organ except lymph node in my breast were afflicted.In may 2012 i went to hospital again (ambulant), cause of possible sarcoidosis in the muscles. Again, i told the doctor, that i am scared of als. The doctor made again EMG in my arms and other tests. No result. for ALS or sarcoidosis in my muscles.She said: I can nothing see in ur muscles. My neuro sent me to a special muscle walk-in clinic ( i dont know if this is the right word). They should look for the sarcodiosis too. This special clinic has special consultation hours for ALS-patients.I was there 3 weeks ago. The doctor made many many clinik-neuro test with me,to test my strength in the whole body. He also made an EMG in my front upper andfront lower leg , cause i feel weak there. He said there is no sign for clinical weakness and absolutely no sign for an ALS.The emg was clean.Also no sign of sarcodiodosis. He told me that i am strong.We can make an nuclear magnetic resonance imaging, but after that i sould think about it, thats my problem is not a myopathy. I will have this in 1 week.I was so happy after this. I was like a new life. But than its starts twitching in my left feet, inkluding buzzing and a little pain. I thin on my left feet were less muscles than my right feet. I think found a dent on my left arch of the foot. THe neurologists told me all about BFS, but no one makes the diagnosis. Thats why am scared of. I am slo scared, cause the last doctor didnt made an emg in my feet, just in my front lower leg and front upper leg.I rly dont know if i have BFS. I feel weak in my arms and legs. I know i have Hashimoto and Sarcodioses ( the sarcoidosis is getting away my docto r said :) )Thank u for help and reading this long story. I am glad to find this site, and i hope i am at the end of the journey of being scared. ty:)
 
Well, Tim, hashimoto is well enough for havint twitches as far as I understand.we have fellow twitchers with hashimoto diagnosis, moreover, I think I would be once diagnozed with it because I have that in my family and my thyroid is generally prone to diffuse nodes. Sarcoidosis is a transient condition in many cases, as far as I can remember, so it is quite possible that your body had cured itself already.BFS is spreading initially - until it take all the body...or vane... or become background... or add cramps... or whatever...
 
Hi Tim, it's very normal to be scared, we've all been there. Trust your neuro(s) when they say you don't have ALS. You have to believe that Tim, you passed all your clinical exams, your EMG results are ok, so be thankful for that. In Europe many doctors do not know bfs and besides that there is no specific bfs test. By ruling out anything else possible the diagnose is (likely) bfs.
 
*update: yesterday was my MRT from my legs. Nothing found, all looks totally fine. The twitches in the feet are still there....i hate this so much :(I know hashimoto can produce twitches cause of lack of calzium and magnesium. I take this both the last year. But no one told me here, YES, ur twitches are produced by ur Hashimoto, it can but not must....i think it would be better for if the neuro would have checked my feet with an EMG. He just test the strenght of my toes.
 
sorry guys, but can u tell.me if is.possible that ALS is in my feet starting and the emg result of my leg is clear?? i am so scared at this moment :-/
 
When I had my EMG, I wondered why the neuro didn't do an EMG of my feet as well as my leg. He said the same nerves work with the feet, so if the EMG is okay in my legs, that's all he needed. Plus he said most people would have a bad EMG in their feet, because of all the use of our feet. So, I think it's fine that he didn't do your feet.
 
Hi Tim, I can only agree with the previous colleague - celar EMG practically is a good sign. it is also true that neuros often even do not look for leg unless they find something strange in the other parts of the body.Why do you think your feet is bad? are you dropping it? can you tell us what is going on?
 
ty for ur answers :)In my left feet is kind of prickling, twitches on the top also. I dont know if this are very small twitches or a sensibility disorder. Always appears when i am sitting. When i try to look at , they are not there.This starts a few weeks ago and its 24/7 the most days. As i told above, i showed my feet to the neuro, but i cant trust him, thats the big problem. I dont feel a real weakness in my feet. I can walk on the toes and the heels. I can move my toes up and down. THe neuro test it too.
 
well, it is usually a good reason to seek second opinion in case of suspicious MND diagnosis, but why you do not trust your doctor when he or she says you are OK?do you think a doctor who probably have seen many patients after stroke can not say if you have clinical weakness? I am sure he or she can :))with clean EMG your chances for bad diagnosis are relaly very low. Even our fellow who blames us for oversupportive nature of this forum admits that on the basis of his own doctor position. I think you might choose to deal not with twitches but with the idea why you mistrust doctor saying you are OK.
 
Sometimes fears become our essential condition and it is so hard to come back to normal life... Psychologists say it usually happens to the people whose basic trust in the world itself was crushed or damaged rather early in their lives. you also may think about that - why it had happened that you could not trust the world (and you can be sure you are not alone here with this approach).wish you a good relief,regardsYulia
 
hi guys, i hope u had a nice xmas :)My xmas was also nice but at one time, fear captured me. Above u see my story with my feet, i found this dent. I am so scared.THis is the picture:
 
Tim,ALS doesnt begin with a dent in your foot. The vast majority of ALS patients go to the neurologist because of loss of function, not a dent in their foot. Are you able to walk OK? Have you been falling down? If not, then you don't have any reason to worry. We all have dents like the one in your picture. Please read this post.-Matt
 
ty Matt. Yes i can walk. I can walk on my toes and my heels. I can jump on my toes also. I am just scared about the twitching near of this dent. I know my last emg at end of october, as written above, was clean. I was in my upper and lower left leg.Ty for the link also.
 
Hi Tim, to be honest I did not see anything strange in your foot. Well, my own feet looks quite like yours and have even more 'dents' (maybe because I am just older, but when i was young they were still crossed with wrinkles - I remember that because I had several issues of cutting the foot in the swimming pool etc.). Normal foot is never smooth unless you do not have edema which i believe is not the best chance. Foot is very much like the palm - I suppose you are not concerned with 'destiny lines' on your palm? So about the same exists on your feet.
 
my fear is getting bigger and bigger. I am total down, crying much all the day. I look on my feet and see two different ones, the left with less muscles than the right. It makes me feel so bad. I dont understand why i dont believe the last doctor, who made an emg in my leg. Two years ago, my situation was the same, didint expect to get back to this :whistle:
 
my fear is getting bigger and bigger. I am total down, crying much all the day. I look on my feet and see two different ones, the left with less muscles than the right. It makes me feel so bad. I dont understand why i dont believe the last doctor, who made an emg in my leg. Two years ago, my situation was the same, didint expect to get back to this :whistle:
 
my fear is getting bigger and bigger. I am total down, crying much all the day. I look on my feet and see two different ones, the left with less muscles than the right. It makes me feel so bad. I dont understand why i dont believe the last doctor, who made an emg in my leg. Two years ago, my situation was the same, didint expect to get back to this :whistle:
 
Hi Tim,first of all, it is NORMAl to have one leg more muscular than another.Then, we often might have asymmetrical edemas of low limbs due to our stationary way of life or work. I personally found that my left leg it thicker than my right without obvious edema - but I knew tha this is due to lymphostasis, and after 10 days of intensive gymnastics it disappeared.just think about that and trust the doctor. Should your leg be really less musclar due to non-compensated atrophy, you would feel that by clear limping, need to pull the affected legg more than healthy one ot make a step, etc. Less mucle bulk is NOT PRCEDING to the atrophy-weakness symptomes, it happens only to already not usable, dead ir otherwise immobilised muscles. If your walking ability is not impaired, thne therer are other reasons for you to have different muscle bulk ot tissue bulk.Most of dents we can observe are connective tissue loss. Because many of us could be associated with deficient connective tissue status long before BFS, we easily can have that damaged. Some of us are a real proof of that idea (like TwitchyMD, as far as I can remember - he had a dent because of working with a hand tool, and the dent is permanent).Please try to enjoy a new year instead of worrying.
 
On monday i went to my friends to play soccer. I was very scared of that, cause i think something would happen, like movements i coudnt make or somethink else.. But it was good. I still have a strong shot in my left foot ;) After the sports i had many pain in my body, but thats ok. I played 90 minutes and i think with ALS i couldnt do that or ? ;)
 

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