Living with BFS Since12/99

GTFOGamerSupGT

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I am an all over twitcher from 12/99. I had an NCS & EMG in 2/00 that was normal and a second EMG in 11/02 that was basically normal from what I was told. Both doctors doctors told me I did not have ALS I had BFS and that due to the stress & anxiety I needed to see a phycologist. I did, he put mt on Effexor and it really helped my anxiety and I accepted the BFS. I stayed on it for a year and got off. However, about six weekes ago the arche in my left foot began to twitch an mildly cramp. I was okay with it for a week or so but then one evening I looked down at my feet to watch the twitching and I noticed that the arches of my feet don't look the same. It looked like the skin was a little loser on my left arche than on my right arche. Then I noticed that all my left shoes and socks fit loser then my right! Well you know what happened, I started to freak, ATROPHY=ALS! I began the ussual self test and I had no weekness. I lasted about a week and finally had to go see my neuor. She did the usual strength test, hit me with the hammer and said it's just BFS. I told I didn't beleave her, I never noticed my shoes not fitting correctly before. She then said okay, I do two little EMG needle tests and we can be sure. She then tested my left tibialis anterior (front of calve) & left first dorsal interosseous (muscle between thumb & pointer finger) both were perfictly normal. I asked her why are you checking my shin when its my foot that is twitching? Her reply was something like this is how we do it. She said she thought I might have OCD (obsessive compulsive disorder) and that I should go see the shrink again, I did and he put my back on Effexor a month ago.
Since then I have continued to twith in my left arche and somewhat all over as ussual. Did the EMG test she did truely check the arche twitching? I have been testing my self and have had no loss of strength, just stress. The bottom of my left foot is sore. I have noticed that I seem to see fewer twitchs over the last week but I can still feel them. I just sat here and could feel the muscles twitching but could not see it. Is that because so much of the muscle is gone that it no longer putting enough pressure on the skin or are they just faiding away? Is this what is called a "hot spot"? I have never had an area thitch for six weeks and I have had BFS for a long time. My fear is that I have now developed you know what?
 
Thanks for help. I found that if I don't watch them or pay attention to them they don't bother me but sometimes this thing gets to me. One of the best pieces of advise I every got about twitching is "don't sit there and watch it". HOW TRUE! The more you do, the more your anxiety level goes up, the more you twitch. Ithink that stress and anxiety are huge in BFS. My doctor told me to layoff excersising for 2 weeks, cut back on my work hours and simplify my life. I've been doing it and it seems to be helping but I know it will take time to truely help and I want releaf now. I mean after 5 years you would think that I would be over the "three letter word" scare but I guess sometimes it sneaks back in. I'm not one that likes to talk about how I feel (I think it's a guy thing) but most people have no idea how irritating it can be to have your muscle twitching all the time. Sometimes they can be almost amusing in location and rythem, but mostly they are irritating.
 

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