Introducing Myself: BFS at 23

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krmsck841

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for those who dont know me...

age 23, male

- started to twitch around 12/05/06
- first clean emg in jan´07 (dx´d with BFS)
- second clean emg in feb´07
- third clean emg in sep´07
- normal reflexes (checked because of herniated disk) two days ago (arms, hands, legs)

i´ve had twitches ALL OVER my body (incl. tongue, face...), buzzing, problems with speech, stiffnes, cramps in my foot, hotspots for several days

a lot of my friends and family started to notice twitches after i´ve told them about my condition


BUT (!!!) today i had the beeeeeeeep beeeep beeeeeeep idea to make something good and look for bening fasciculation on google to maybe help other people.... AAARGHH ARGH AARGH i could hit myself

just after a few minutes on other medical forums in harmless topics with BFS topic i found +++ victims ...

i instantly started with tremor, sweating and so on.... running down my face .... pure panic !!!

STOP TO USE GOOGLE, NEVER EVER USE IT TO SEARCH ON MEDICAL THINGS, STOOOOOOP IT RIGHT NOW, EVEN IF YOU WANT TO HELP


what the *beep*... all my advances are gone right now....
 
Well there you go.

By the time I see another neuro for a second opinion that will be a full year after this current bout of concern with my tongue.

I reckon I am not declining all that fast to have made it this far :)

Actually I really started a couple of years ago and there are some ironies over that because it was my left foot that first freaked me out and got me referred to a neuro. Now that left foot comes and goes but in learning to swim it is not my left leg that turns out to be the weakest after all, my right is giving me significant problems now. The interesting thing is that in water whatever is the case on land is more apparant. I can straighten my right leg on land but it is hard to do so in water. Thing is this thing with my right leg I was probably born with, it shows in photographs from my childhood.

We get hypervigilant.

I was scared for a while because of the asymetricality I observed in my face until I saw the same in photographs of my mum.

Am I getting weaker?

Well the answer has to be yes, I am not what I was ten years ago, and I have really gone down since then. But then I am ten years older and the wrong side of 50 so am I expecting too much?
 
Mine started 10 months ago. I had two emgs this year and the fasciculation appeared in both. In the first they were generalized, only two muscles tested didn't show fasciculations. The second showed fasciculations in only two muscles, althought I feel them more now than in the beginning of year and I can see them more times now to. I have brisk reflex to, but I think all the times that my reflex was tested even when I was healthy they were brisk. In the day of second emg I was in a "good day", but even with these two "clean" emgs I still think that something is wrong. I don't know if is als or not, but I think it's something and with time maybe I discover what is and I hope that can be something benign.
 

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