Histamine Intolerance: Diet and Relief

LaurentHCH

Well-known member
I recently had a flashback with strong fascics and heart arrhythmia. i then went histamine poor in diet and rich in fresh food and vegetables. and guess what, not a single fascics since...there are lists on a histamine free nutrition.more on histamine:
 
still no fascics at all. but people in this forum seem to be more interested in complaining about their symptoms and anxiety than in possible solutions.
 
I am really interested in your case. I have gone through your posts and learned that your BFS was quite severe. How did you find out about histamine? What kind of diet you are on (I ask because you should not eat eggs, processed meat...)?So it really stopped while on the diet, nothing else medically important in last year?
 
don't know if it is the histamine doc. but i avoid eating sugar, coffee, alcohole and fruit. eating as little starch (bread, pasta, potatoes etc) as possible - if so, then chew it until it gets liquid in your mouth then swallow but only then. as much fresh vegetables as i can eat, at least half of it raw. olive oil with it and almonds. my thyroid antibodies disappeared, my pains stopped, also my fascics and even my "uncurable" spondylitis ankylosans cured within weeks only! amazing.
 
I am not sure your diet is exactly histamine low ;) sugar is not a histamine source, as well as caffeine. Beer, good porto, old cheese, chocolates, citrus fruits, pastries (as they contain yeast) - maybe, but not pasta/potatoes or apples.in the meantine, for many of our fellows exactly general bowel-friendly diet is good - less sugar, less caffeine, good chewing - that may make you feeling well without any connection to histamine. Great to see you found your own solution, but you might also note that BFS is diverse and there is no single solution fitting everybody, and not always it is a case of only diet.
 
Histamineintolerance can be translated thusly:"Overactive immune system causing demyelination of nervous system"Histamines are the immune system reacting right? So it makes complete sense that controlling histamines this might play a role in controlling the symptoms.It would also make sense that Prednisone would help all of us too. Has anyone tried?Really quite common sense. You might also look into Curcumin as it is an immune system modulator. Have you tried taking benadryl ? I wouldn't make a practice of it, but its worth a one time test to see if symptoms dissipate ... at least then you can draw a correlation.The diet you are on reminds me of the Paleo Diet (google it). Its a non inflammatory diet. Its recommended for everyone with damage being caused by the immune system.And while all of this is good and well, I would rather address the problem directly by fixing whatever is wrong with the immune system. You can suppress it I suppose, but the problem is still going to be there in the future right? :(
 
Any inflammation related foods could agitate this condition. That's a factual statement agreed-upon by nutritionists and "experts". Most conditions similar to ours focus on non-inflammatory foods. Whether its histamines or some other chemical causing inflammation in tissues (minor but ongoing) I am not sure. But sugars and caffeines and alcohols will singlehandedly make this (and all those other) conditions noticeably worse if you keep going with them. I agree with the original poster wholeheartedly that dropping excessive sugar intake (just avoid the cookies, candys, and jelly donuts), dropping alcohol completely, and avoiding all caffeine could improve your symptoms significantly. Take it or leave it. But dont criticize it if you until you've actually made the effort to try it religiously for a couple of weeks first. Thats a general suggestion to everyone who mocks / insults / belittles peoples ideas for solutions on here.
 
thanks bfsburger for your support:-)that's right, I not only avoid histamine but generally pro inflammatory food like grains, starch and also fruit (fructose sugar). it seems to be a big help and i would bet that many in this forum could profit in terms of a major symptoms decline. as bfsburger said, take it or leave it.
 
well to me it is not only about twitching but my pains of sponylitis have gone and the desease too. this is a big relief for me. i prefer not to,eat certain food than to go through these pains again. nobody has to try it. and it maybe just needs weeks or months to get relief. but i am not satisfied with complaining about symptoms and then not change anything in life.
 
The fastest way for me to make my twitching worse is to binge on Oreos and soda. Found that out a couple weeks ago. Or maybe that was the "reverse placebo effect before I even knew it was going to happen" syndrome ... Or maybe it actually does have some effect. Three completely unrelated people have now suggested the Paleo diet to me. One of which was a doctor, so those of you obsessed with medical degrees can keep reading without worries. Not sure what I think about zero grains, but i have to read about it some more. Reducing inflammation is the goal though, and I am one of those people who definitely feels very different after eating. Whether its good or bad. Speaking of the Wikipedia page ... is there anyone who can clean that thing up? It seems to be a bunch of people arguing over whether anxiety comes first or BFS comes first. There is very little in the way of actual facts, information, resources, and reliable information. It looks more like an ongoing discussion of complete indecisiveness. At least when I last checked about a month ago.
 
in my case fear was prior to any symptom of bfs. i had to do a lymphnod biopsy and feared it turns down to be cancer. i was terribly anxious. however i has ro take antibiotics 7 weeks before bfs started ( had a toe infection). but no doubt anxiety was first.
 
Should we really argue, if anxiety comes first and then BFS, or vice versa?Stress goes first, and it might be of any kind - hard life/bad schedule, extra sports (I rememebr one fellow twitcher saying he was doing 3 or 4 workouts per week, and the rest of days he was running 5 miles per day or swimming equally), lazy life, viral infection, maternity (and being a young father too!), wrong diet for many years, emotional sterss, name whatever. I haven't seen yet nobody who would not fit that description here, no matter whether they suffer generalised anxiety (as me), or not. At least, I have well over 35 years of GAD experience (virtually lifelong, and very unpleasant), but only 1 year of BFS... My triggers were definitely 14 hours sitting typing working day for a year, a lot of emotional sterss and a flu. I still needed some strong push to my immune system to make my nerves hyperirriated despite on few decades of constant adrenaline oversupply :)))Anxiety "helps' to stay in and makes overall condition worse, but one should not be really a GAD/OCD /whatever similar disease sufferer to get BFS.AFTER getting BFS, almost 100% start to have anxiety disease, more or less prominent, and in fact often the most anxiety striken people demonstrate the most dramatic or fast healing (if they have an experience to live with anxiety disorder, or if they just become decisive enough or have less secondary benefits associated to high anxiety).
 
Hi Laurent. I dont have the dicipline to try this anti-histamine diet, however I thank you for reporting back and letting us know how you are doing. I have followed your story for some time and thank you for reporting back.Coincidentally, I just find it odd that I have suffered from allergry-like symptoms since about 3 months into BFS.I have had running nose and stuffy nose in the morning most every day since my BFS, along with post nasal drip. It started and I cannot explain why.Kleenex brand loves me and I should buy stock right now because I go through boxes a month. Not sure the relation but very interesting coincidence, whether allergic or not.Thanks for checking in. always good to see a vet.Cheers,Greg
 
I would also like to know in regards to sevens question. By the way, I always used to take Benadryl as a sleep aid, when I could not go to sleep. I considered it safer than sleeping pills. But now I'm starting to wonder if Inhibiting histamines artificially over and over and over again was really the smartest thing to do. There is always a reflex reaction when something is artificially inhibited in the body with drug.
 
Glad to hear that you are having success. Going to a low histamine diet also helped me when my symptoms were bad - used info at this site: You don't have to stop drinking - just stay away from drinks that are high in histamines - aged liquors have the most....vodka has the least. Coffee in moderation, etc., as you are basically trying not to irritate your system. I did find less nerve problems just becoming aware of which food groups are the most histamine producing and not eating them together - like eating eggplant, tomatoes, aged cheese, and red wine together would really set it off and why because these are all natural histamine producers. You know, many of these plants are related to belladonna, a known poisonous plant, so it is good to moderate their intake. Then again Laurent - some people react much more strongly to these histamine producers - perhaps you are one of them. This was pointed out to me a long time ago by an allergist as she had seen many reactions in her patients to histamines and saw mine as similar to those.
 
update: had an abdominal inflammation during 10 days and guess what: the fascics were back:-) and guess what happened when i managed to get rid of the inflammation? yes fascics are gone! i am 100 percent certain that at least in my case all my health problems included vitiligo, as and bfs are/were related to digestion problems. one came out to be clear after analysing my diet since my vitiligo startet. i used to eat much too much of olive oil, one bottle every 10 days. i just read that too much of oil causes digestion problems and therefore malabsorption. my digestion now is back to normal, for the first time in 15 years! i am certain that i have discovered the key for a complete cure! it is in my case not about histamine but to analyse my diet has helped me to get a better understanding of the influence of food. i am sure that a lot of you have the solution key on your meal plates.
 
Laurent, I have had similar experience when having gastroenterial infection. Though there is no neurological explanation, I think there is a lot yet uknown in this area, there must be an autoimmune connection. Also Laurent, would you find a time and participate in the study that is led by prof.Carvalho? Duration of your BFS and association with other conditions (assumed) would be really valuable. If you do not have your EMG results, at least filling the questionnary would help because he has gotten only 10 responses so far..and I am affraid that his unique study could be stopped because of lack of valid data (yeah, despite the BFS site claim how common is this..when it comes to anything else than complaining, people are not that active).
 

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