Help! Twitching Shoulders Worrying Me

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TwitchyMD

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Hi,Has anyone had twitching in both shoulders often? For me, its pretty often and triggered by arm movement..I am worrying again :( pls help
 
I also get shoulder twitches very often twitchy doc...I've had a clean emg and two clean neuro exams...try not to let it make u anxious....my motto is a twitch is a twitch is a twitch...
 
HH twitcher, what do you mean that they can be symptom of ALS? That is what I am affraid of (textbooks suggest to look for them in shoulder grindle). But more of you have them, I feel better. And I am reaching 5ht year!
 
Hi twitchy doc, not my business to say but...reading text books about ALS is as bad as dr google....it's not going to help your anxiety...in fact I think even u will agree it has increased it again...the one thing every dr and neuro has told me that rings true....if I was a bit dumber I'd be happier......best wishes my friend Shannon
 
TwicherHH, I just have a feeling that no many people have this..maybe I am wrong (I hope). Very often I feel my shoulders twitching in the front or back, often with left arm. I know after nearly 5 years I should be fine, but I have too much knowledge due to study which is hard to ignore.
 
Tdoc,I get this so much that I don't even notice it anymore. Both shoulders pop at the same time. Sometimes, just one shoulder, sometimes the other, but I get it in both shoulders quite a lot. -Matt
 
tw do not worry! I know how ur fealing though, my shoulders twitch allot mainly my right though. As for al's twitching in shoulders DO NOT EVEN PUT UR MIND THERE! I will tell u I know of someone who did in fact have al's and he ONLY I mean ONLY twitched in one shoulder and NOWHERE else! So with that said u have 0 percent chance of a worry! But to add to that this guy had other issues with the shoulder also. u are totally good :) Ashleyp's.......it's snowing in Oregon yay!!!!! so so excited! we never get snow
 
Twitchy D. I hate seeing you come on here in a worry because it makes me a bit uneasy. I think it is because I respect your knowledge and your ability to research. I also think we are a bit similar with the fact that we both have a little bit of pessimist in us and that we both have read entirely too much on the topic of BFS and ALS. That being said I would also like to chime in and say that the back of my shoulders on both sides continues to be one of th shot spots on my body. It always seems to be the same fiber. The one the runs down the back of the shoulder from the trapezius and connects to the tricep. This fires on my quite often through the day. Only my calves are more active.TDoc, I have a strong suspicion at we have read the exact same articles on both subjects. I also have spoken with you before about Dr. Singh and his interpretation of BFS. Without going into detail I think you will agree that he is probably the most pessimistic neurologist on the topic of benign fasciculations. If you agree with this, like I am sure you will, then certainly you know that you are outside of even his super silly "monitoring period"! So even the most pessimistic neurologist in the world who co-authored the report we all hate to discuss, would even dx you with BFS and nothing else. That alone should give you peace of mind. Please stay in touch with us and keep us updated. It is good to have you as part of the community, even if it does occasionally make me cringe. :)
 
td, i cannot believe you are worrying about shoulder twitching after the duration you've had bfs?!?! comeon maaaan! its just a shoulder twitch, i don't understand why you have an obsession with finding areas that als patients twitch more frequently, because as far as i'm aware its a load of ball crap, and im highly aware :LOL: take care TD :)
 
I am myself today very disturbed by a rather powerful and constant twitch behind my right shoulder on the left, twitching just above the left elbow. At night I have experienced some cramps to my feet. 4 years 11 months on, day more day less, I do understand fears and distress this condition may cause.
 
I have to agree with some of the other posters in that I don't understand the worry of one twitch versus another. Tongue twitches, shoulder twitches, thigh twitches... Why does it matter? Without true weakness they are all the same. I get pops and rapid twitches all day long and all over. I get several shoulder twitches every single day, I can't even count them.
 
Greg, That's called a hotspot. I had one in my thigh that lasted nearly two months. I can't even say that its gone because it still twitches daily but just not continuously like it did for those two months. I have one in my eye right now thats been nearly a month. If you can still function using your shoulder and lift weights like you are, no worries. I know its worrisome, but please rest assured that its all very consistent with BFS. -Matt
 
Thanks Matt. It's just that it seems like nmost on here with hot spots, they had twitching all over the body, not a single hot spot without other twitching elsewhere. I have had eyelid twitching in the past, just never linked the two in my mind. Seems crazy to only now have a single shoulder twitch all the time. Although it wasn't twitching when I woke up this morning, for about 2 hours, no twitching. Then at breakfast pow, full on twitching and popping and hasn't stopped yet
 
Now that I'm hyper sensitive to everything, I also noticed I was talking to my daughter this morning after breakfast and it felt like a jolt from my shoulder that sent my head to jerk to the side ( fast jerk to where my left ear moved to my left shoulder)
 
GD13, kolts and jerks are a very common part of BFS. Jerking and jolting that moves limbs/hands/feet and for sure the head are never part of ALS, there was sometime an EMG specialist linked on here that said if a person describes jerking limbs with his fasciculations, this practically rules out ALS.
 

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