Help! Tingling in Legs, Pains?

LaurentHCH

Well-known member
i soon cannot cope with this anymore.....i have tingling sensations in my entire legs and in both feet 24/7. the fascics have declined but the tingling is permanent now and the on and off sharp pains are more frequent. what is this crap??? i have back pain for weeks and neck pain but i guess a pinched nerve there cannot cause such issues in both legs....
 
My legs tingle like that too Lauren, it used to be constant, now it likes to come and go. I was told it had nothing to do with a pinched anything in my back, MRI and EMG ruled that out. Neuros who know about BFS say it hits the motor nerves as well as the sensory nerves in alot of us but not all of us. Its no fun, but its not deadly, and in many cases gets better with time. Be sure you are getting enough rest, I've noticed that not getting enough sleep really ramps up this symptom.Take Care Robynn :D)
 
Same "crap" as fascics but on the sensory nerves.-- Side by side comparison --Random single twitch on the "driving" side --- Random single stinging sensation on sensory side.Repetitive twitch (same spot) on the "driving" side --- Repetitive stinging sensation (same spot) on sensory side (and this is really painful!).+ tingling all over, burning, electric shocks (mainly in feet, legs because it is the longest nerves in the body) ... etcSmall Fiber Neuropathy. Many peoples with SFN gets those kind of "electric shocks" and tingling. No numbness, so it is not Large Sensory Fibres (they are carrying touch, perception but no pain sensation).Definition Small Fibre vs Large.Now it is painful ...Better to have twitches that are painless.Sorry :( , you will have to learn to live with this ...It is obviously not stress related ... I use Lyrica ...Baclofen is an other option.There is others ...
 
Lauren, you do NOT have small fiber neuropathy, PrickLedPin, quit telling people this crap, you are not a doctor, and small fiber neuoptathy is not the only cause of this crap, BFS does this all on its own. If it was SFN, there would be neuros everywhere giving patients nerve biopsys and they are NOT.
 
Sorry but ... you're not a doctor yourself.Ok you go to a Neuro like i did (after waiting for appointment, General practitioner ... etc).After 8 months they stick a SINGLE needle into a stupid muscle ... and everything is fine from head to toes.Obviously it is not ALS, neither MS, nor stress ... i knew that from the beginning.This single stupid test says everything from head to toes and ... the day you had this test, it was may be a good day ...Don't i have to remember to you that some peoples here (including Dr, as Simon_w) where diagnosed after MORE than one EMG there was demyelisation/remyelisation.EMG is NULL for sensitive stuff and pretty sure that no one here had any sensitive test like Quantitative Testing at least.It doesn't mean it is a dead sentence anyway ...My neuro told me it is PN and he is having some experience i presume.The second neuro i saw for second opinion said i have some few abnormalities like hyper-reflexes.By the way, if you go to see a neuro for twitches and you walk, you're dead, i.e. no neuro will consider you.But if you go and talk about the sensitive "crap" (and omit the twitches) they will think about sensitive PN and they will consider you.----My big boss was twitching too. The eyelid i could see when he was talking.It would happen only because he was stresses about big project. He is the director of 1000 people ...And he doesn't have any "all around" twitches and painful paresthesia, the company would have gone bankrupt ...Anyway ...
 
I never claimed to be a doctor Pinprick, but you running around here all over the board telling everyone that they have Small Fiber Neuopathy is just careless. You do not know this. And to be honest, most of the people I speak to with the sensory issues, dont have pain with it much if at all. SFN is different then Peripheral Neuopathy. PN can be detected by the EMG, SFN can not be and requires a biopsy to diagnose. I dont think you had that done did you? And in one post you will say that your Neuro told you that you have PN, and in another post you will say that he told you that you have SFN, which is it bud?? And in some posts you say you have both :rolleyes: And even if you do have it, that by no means, means that everyone on here with sensory garbage has it. SFN is progressive and very painful. Most on here, if at all, are not complaining of that kind of sensory pain, some nerve pain yes, but like I said SFN is very painful, and also progressive.I took one of your post to my neuro a long time ago because you had me scared over the summer that I had SFN, and my neuro read what all you said and he said your understanding and description was way off base and that I would be in a lot worse shape if I had SFN, so I just dont want you scaring others into thinking there doc missed something.Robynn:)
 
thanks mommy.....! is this not a sort of progression when tingling and pains increase over the last weeks? @PrickLedPin: please stop diagnosing me with sfn! this puts me down and as far as i was not diagnosed with it by e reputated neuro, i don't want to believe your theories!
 
Lauren what you have going on is not a disease progression of any kind, it is simply what BFS does to some if not a lot of us. It will pass I promise, but you have to do what you can to keep your anxiety and stress under control to give your body a chance to repair its self, and it can and will do this. You can ask anyone on this board, I had some of the worst sensory stuff of anyone on here, but mine is tons better these days. You can get past this part I promise. It does get better.Please feel free to PM me if you need to, I'm here.Robynn :D)
 
Hi I wasnt sure whether to start a new thread or not, but I'm recently suffering from needle sharp pains, mostly in my fingers and feet... I've been twitching for almost 10 years and had become quite OK with that, but things seem to be changing. Hardly ever get persistent twitches now, but I noticed my feet underneath were sore and aching when I was getting up in the morning for no apparent reason, that was about 4 weeks ago. Then I started noticing mild pin pricking which also started appearing in feet and my hands to a lesser extent.Now, its 4am, I've taken an oxazepam 15mg to try to force mysefl to sleep which normally knocks me out pretty good twitching or not, but these sharp needle type pains seem to appear randomly in the extremeties just when Im feeling like I might doze off. Not noticing any muscular weakness which is about the only positive.Is there any way this could be 'not a major problem'? Im finding myself longing for the simpler tiimes of annoying twitches and/or aches - at least I could usually sleep a few hours that way. Not sure if it's diet related, or lack of exercise, both of those things have been less than ideal in recent times I suppose.Hope someone can shed some light on this... (Ive never seen a neuro or had an EMG or whatever).Damien
 

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