Help: Constant Twitch Above Elbow

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LaurentHCH

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my hotspot twitch just above the ellbow does not stop, not a single second without this fast jumping twitch. itdoes so for 3 days now, every single second, 24/7. new to me is that so far i got relief with hotspots aftwr sleepor with benzole meds. bothdo not have any effect now. i am really scared again after 13 months intothis ( last neuro visit in february with cleanemg and clinical). do you alsohave such bad hotspots???
 
Of course! You are just as fine as your neuro said. Relax. Benzos aren't doing you any good. You might want to try some real anxiety management. I can't remember--Are you in therapy or taking anything, or both? You need to be proactive about the anxiety, not the BFS symptoms.
 
thanks pretty replier;-)you know i did not have anxiety for months now. it just came back AFTER the hotspot. during my relaxing holidays in australia where i was also twitching i have learned that it is not anxiety related at all. there must be something wrong in the bodys transmissions.
 
my neuro at the als-clinic in switzerland told me it is anxiety-related and will go away. when i tell him that i was mentally fine for weeks and months and got flare ups anyway he seems rather meaningless...how to trust these people!!!???is a hotspot like this that lasts for days and goes every sevond normal for bfs???? not sure anymore...;-(
 
laurent,i am a newbie (with occasional hotspots) but from what i read about hotspots they can affect every part of the body and last for hours, days, weeks, months..... why do you think this hotspot is different from e.g. your left foot hotspot? o.k. you wrote ist 24/7 without disruption and you never had that before, but as far as i read it is not uncommon with bfs.and you don´t have weakness i guess because you wrote that you are at the gym several times a week.if i get hotspots they are mostly around my joints, knee and elbow. they scare me too but i don´t think they are different from other hotspots.regards Smiley_20
 
ellbow doesn't stop anymore...my arms and legs feel sour....that's it....i have a dramatic change of condition...that is not bfs but something very scary....
 
Laurent,I think you have a responsibility to say more than your arms and legs feel "sour." You need to say what you want to do but can't. Otherwise, it is hard for us to know what really has changed. We all have twitching. Some feel soreness and run down. If you think your condition has taken a major turn, please use objective language like "I fell" or "I couldn't walk up the stairs without holding on to the rail" or "I could not lift my suitcase by myself." Otherwise, we cannot give you objective advice and your story will not help others gauge their condition either.Krackersones
 
He tried that. But they sent him back home as he didnt have anything sinister. BTW I read somewhere that he already joined an ALS-forum. Go figure the rest.
 
thanks for your inputs - yes i have lost control of my mind again - sorry.but what is wrong in joining an als forum. there are also others from this forum over there.yes i got maybe obsessed with the idea of having or getting als. i try my best to get over it. but my neighbour just died of it, we both live in a radon area.so it is not always very easy not to think about it anymore. i was well during my holidays, the twitches were quite strong but i didn't care about them at all.the new twitching along with the pain, feeling of weakness and soreness leads me to think of other causes to this crap than bfs. i don't think i have als but there is certainly something wrong with me. i was a very good sportsman, this crap stopped me quite hardly. i am like Krackersones, i want to know what is wrong with me. you know i learned a lot on neurological disorders, also du to my presence in these other forums, enough to know that there are other conditions than bfs and als. more benign ones and maligne ones. and i know much about toxicity of things in the air, in food and in households. i don't believe in the term BFS. For me this is just a dx because the docs don't know much about our condition. the told me it was anxiety related. ha ha ha, i was a relaxed guy, successful in work and sport. anxiety was 100 % not the cause of it. the reason for not going back to the als clinic: i don't trust docs anymore.
 
ive got severel hotspots maybe 200 per minute 24/7 never let up for a second 5 years now...i bet there's a few on them other boards who swap me places ;)
 

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