Healing and Recovery Through Diet

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I thought I'd chime in here regarding gluten...about a week and a half ago after getting a hotspot on my outer calf I decided to go gluten free and cut back on my sugar. After three days my hotspot and big twitches went away, and all that was left was random small quick twitches, lasting no more than a second and only noticeable when I lay down. It was IMO an improvement. Yesterday and today I cheated. I ate donuts, drank wine, had bread and butter, and just finished off a large cookie. You could say I tested my hypothesis. Right now a new spot (my knee) istwitching away. Coincidence? I don't think so. Right after I finish off this glass of wine with this crusty French bread and manchego, I'm back on the diet. Cheers.
 
I had a follow up appointment with a neurologist from the university of Minnesota today and they confirmed that yes it is bfs, and he also said the steps that I have taken so far have been the right steps. He said diet, managing existing medications and stress are the 3 things to work on to help with symptom management. He also told me that dairy should be ok but to gradually add it back in. I started a new probiotic enzyme that is supposed to help with a wide variety of food sensitivity that I got from whole foods. And ate a small amount of cheese. I have a feeling I will be ok with dairy but gluten I will avoid frorever. He also said the medications that I was on were a definite factor and they can re-wire the brain when taken long term, but that it is not perminant and most cases of bfs he has seen have resolved within the first year. So I am hopefull especially with the progress I have made so far in the past 2 months. I feel better all the time and I am healtier and less stressed than I have been without medication in a long Time. So in short I'm just going to keep on going and hopefully god willing it will go away. But even if it stays this way I am now at a level where it doesn't bother me much and I can sleep and relax again.
 
Unfortunafelly for me diet didn't change much. I started eating normally on vacation and nothing happend I actually had less twitching:) I'm not sure if I will try another diet, but if yes, I'm thinking of trying raw diet to make na body more alkaline ? I will also test myself for gluten intolerance and sensivity.
 
So Ive stuck to the gluten free diet for about a week now and so far no hotspots, just random twitching that is not too noticeable. I would say thats a great improvement, so thank you to all the members who suggested this, and I encourage any newbies reading this to give it a try if you haven't already. However, (and this doesn't concern the guys) my symptoms seem to get worse when I PMS...so we shall see what happens in a few weeks, and if the diet change is helpful then too. In retrospect, I think it has something to do with the fact that I crave carbs and sugar when I PMS, and that means more cookies & bread, meaning tons of gluten, hence more twitching. I also wanted to see if it had anything to do with my Gilbert's syndrome, which is a benign condition in which I have higher than normal bilirubin when I fast or am sick or stressed...I have seen in other posts that there is maybe a correlation, because I notice the random twitches more when my bilirubin is elevated in the morning when I am lying in bed, which may have to do with going 8 plus hours of no food...maybe a gluten free midnight snack will improve this. At any rate, I am just happy that I am past the mental freak out aspect of this...the fact that I have good days, great days, and that they aren't all bad days, shows that this truly is something benign.
 
Awesome news emmie! I truly believe dietary modification will help many people on this forum, but time and trialing will tell. Hopefully with more success stories being posted more will muster the courage to try. Modifying your diet is no easy undertaking, so hats off to those that have done so. From what I've learned through my experience though there is a strong correlation between digestive health and auto-immune disorders. I personally believe BFS to be auto-immune related. The great news is that there are alternative solutions other than drugs that are far more effective at treating conditions such as this. I belive with time more and more light will be shed on these and more and more people will capitalize on them as I have. It's a leap at first because it is a foreign approach to what our supposed 'experts' in the medical field have led us to believe. Results speak louder than anything else though. Please continue to share results. Thank you.
 
I agree with the previous post. I have been on the diet for 3 months. I still get twitches but far less frequently and last only a few minutes at worst compared to days or weeks. I even have times where I will have no noticeable twitching at all for 6 to 10 hours a day. I sleep much better and feel like I have more energy. I don't know if it will ever go away compleatly but it has help a great deal.
 

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