Grateful for Support: 14 Day Update

Highlights Only
I

InvisibleItches

Well-known member
1st of all:Thank you to all who have supported me through all of this. I took the advice from my last two posts to take some time away from the internet and even this forum, and it actually seemed to help. Any new little symptom that occured during this past 14 days I let just ride out.....And I thought I was doing much better! Special thanks to Johnnythejet, Twitchinjohnny, Gracely, Seepi27, MarioMasher, and I'm sure I'm missing a few others, but I definitely took the words of your last few posts to heart....Yet, I need HELP with this, with what just happened, because, it seems very very bad and I couldn't just sit and cope with it, it is eating me up. For some reason, the past 2 or 3 days, I've been examining my tongue again. I'm not even going to get into the fact that the tongue droops to one side everytime I stick it out at full-attention....So, just now, as I got back from the gym, I stuck out my tongue. Stuck it out far, just like I've done numerous times (probably thousands of times over the past 2 years) and then something horrible happened. MY ENTIRE JAW AND THE MUSCLES IN MY THROAT LOCKED UP. THEY LOCKED OUT. I couldn't MOVE ANYTHING :< I'm trying to be rationale about this. Tying to remember all of the key words to live by in BFS. I don't want to overreact right now. Perhaps this is nothing to worry about. Hopefully it is part of BFS? Hopefully it isn't what I truly fear. I know I was advised to stay away for a while....And I doubt that 2 weeks qualifies for "a while" in anyone's mind. But I'd really appreciate some HELP HERE. I'm in an almost full-panic right now.With regret and somewhat embarrassed but definitely horrified,Ryan
 
ryan, I am not sure what exactly had happened... are you sitting right now with a tongue out? can't open your mouth?in fact there is well known medcial story (I am not sure it is a joke or not) about person who put a lightbulb in the mouth and got jawlock (it was due to jaw dislocation - and it is not necessary to open the mouth even too wide). if it is what had happened to you - go immdeately to a surgeon, five minute of pain, and they would return your jaws back.having bloody tongue excercises for two years is quite enough to make your jaws easily dislocated (we humans are not intended to open out mouth wide).do not sit herrer go get surgeon examination immediately.if that is a dislocation, it is easily repaired. but never do it again.
 
Gracely,Thanks for the quick and thoughtful response!....it is not still LOCKED, but my THROAT and JAW muscles hurt very bad right now, still. Very bad. It's freaking me out! ...I'm scared of ***
 
my dear, you have only severe MUSCLE STRAIN. Which is quite expected after all gymnastics you made to your jaw muscles and tongue etc. for las few weeks.probably your dislocation was self-cured (lucky you are!) but of course muscles are strained and in pain.Please also remember that in BFS quite often side effect is an increased mobility of joints (clicks etc.) - so supposedly your ligaments are less elastic causing easy lock-out.I wrote to my doctor and she says people can have jawlock even when yawning. That one whcih needs ER visit to be corrected...please please never look at your tonge in your way. next time it would be dislocation, I can tell you for sure, and it might be less prone to self-cure.
 
Yeah there was a girl on America's Got Talent who this happened to just this year. She was opening her mouth wide to put an orange in there and her hinges hyperextended and it just all locked up. It isn't an uncommon thing to happen when you are opening your mouth too wide.
 
I dont know whats more shocking, the fact that i have experienced exactly what Ryan is experiencing, or that Mario still watches America's got Talent :D)
 
THANKS GUYS!I for one am honored when I get a response from one of the founding fathers, thanks Garym! And Mario, Gracely, and Bosley23. Well, I thought what happened to me last night was cause for great concern. I mean, the muscles in my THROAT and MOUTH stopped working! I lost it :<That is why this forum has saved me on many occasions from going off the deep end. I will admit, I'm still very anxious and worried, but reading that this seems to be --almost-- normal and something that others have experienced and that it hasn't generated any voices of concern is soothing! -Ryan
 
Surely they stopped... because they vere in very unnatural position...people can have what had happened to you in very similar conditions - yawning, eating, even being at the dantist office (and it is enough just to stay with open mouth for a while to get some sub-dislocation). In fact the victims of jaw dislocation are usually very surprised and frightened because not every time thay can fix that by moving the jaw... and its dreadful and painful experience...hope it would be a good reason for you not to self-test yout tongue anymore :)How are you now? Is everything working?
 
Ryan....upper motoneuron does no mean face and jaw ;) It is a part in the nerve system, which consists of upper motoneorons and lower motoneurons, but does not have to do with the area at your body.
 
Ryan, all what you ahould digest is - when you have fasciculations or twitches or myoclonus call whatever, AND your EMG is OK (or shows fascics only, without signs of motor unit changes) - it is NOT ALS.People with clean EMG and ALS have other clinical picture - they demonstrate spastic paralysis signs first. Spastic does not mean they have spasms. it is a name for paralysis accompanied with muscle overcontraction (like after stroke, when hand is put in specific position, if you ever had seen people after stroke), or leg is also in specific position, etc. that is what upper (or brain) motoneuron damage cause.Damage of lower motoneuron (located in spine) causes so called weak paralysis, in which it is not possible to contract muscle, and leg or hand are rather like a rope ones - like in people with spinal trauma. So ALS is a combie of both of them...that is why clinical weakness is accompanied with hyperreflexia in it and that is why we do not suite this picture.
 
This means that an UMN onset has nothing to do with twitching.and for sure not with locked up jaws. Those jaw issues are common in TMJ , which is often due to jaw clenching and tooth grinding due to stress or anxiety. I used to get that a lot. The citation is a very old post. In the meantime I learned that it makes no sense at all to post medical information because anxious people wont read it thoroughly anyway. And even if they do, their anxuious mind will start to twist around words and understand what it wants to hear: blabla......ALS.......upper......possible......and make people freak out. It will not even recommend READING about UMN signs. Because noone on here has them, but I know that if ear itching was one of them, about 80% of the people on here would suddenly start to scratch their ears.....in the end just forger that medical post, and be reassured that you can trust your EMG
 

Users who are viewing this thread

Total: 1 (members: 0, guests: 1)
Back
Top