Frustrated with Neuro's Cancellation

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santos271

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I am so freaking mad!!!!! :mad: The *beep* neuro's office JUST called (after 5:30 pm here) to cancel my 1:00 appt for tomorrow b/c he's "sick." Sorry, but my @ss he's sick. Jeez - do they have any idea what people waiting for an appt are going through? We're not talking about seeing a dermatologist or something. I can't believe this. I was so - finally - anxious to get through this week, get this appt over with and now I have to reschedule!! I don't even know when I can get in - I have to wait to find that out tomorrow.I can't even explain how upset I am right now. I'm hanging on by a thread here and I was hoping it would be over, one way or another, tomorrow. I want to scream.Joanne
 
Aaaaaaaaaarghhhhhhh! :mad: That's so frustrating. It's happened to me before too, and they just don't seem to understand how it affects someone that is waiting on pins and needles to see them. It will all be ok though...just hang in there. Here's to scheduling a new appt as early as possible! I'll think good thoughts for you!! :D)
 
Hi Joanne--You are certainly correct--this sort of thing is maddening. I have a follow-up myself next week and am afraid it will get nixed and I'll have to wait at least a couple more weeks as I'll be out of the country!But--might I suggest that since you took getting an earlier appointment as a bad omen (which it wasn't ;) ), then the cancellation is a good omen that indeed all is--and will be--well :D) . Just looking for that silver lining--we always seem to look for ominous signs, so why not a good one instead! We'll all keep pulling for you to get in there soon so you can rest easy; in the meantime, I think you said you had a weekend getaway planned(?). I know how much you wanted to get this appointment out of the way, but please enjoy the weekend as much as you can because in the end, you're going to be fine and you'll never get this time with your family back. (Now, if only I'd follow my own advice :oops: ). Mark
 
Thanks, Mark. I'm a little more calm now, though still very disappointed. Yeah, I thought of my "signs" and how perhaps this is the "universe" telling me I don't have a serious problem. Actually, I think it's just the "universe" giving me the finger. :) My husband and I are going to Aruba next weekend - leaving next Friday. I was scared either way - scared to go not knowing what's going on with me (if anything) and scared to go having been told something bad by the neuro. Now, I looks like I'll just have to go on my trip still wondering. Maybe it's better this way. I haven't been researching but I had another bad day - another one of those days where I can't imagine that there's nothing really wrong. I seriously pray that I'm wrong about that.Thanks again -Joanne
 
i was just giong to mention "one more sleep!", and then i read this. I can imagine your frustration! we've been working up to this week. well, if your system is like mine, I suspect you'll have to wait until after your trip until you get antother appointment. You've got to find a way to not let this take over your thoughts on your trip. Aruba in February, now that's a treat! Why was it a bad day, more of the same??
 
Bad day - yeah, more of the same. Just the worry that I've got some terrible illness. The constant reminder due to the persistent dizziness that hardly goes away. And when it does go away I'm always waiting for it to come back - which it inevitably does. At least when my twitching was bad, it didn't bother me when I was out and about doing things - I could forget about it for a while. The dizziness seems to be there most of the time. At least, if I take a Xanax the dizzines is helped somewhat. I think that hopefully points to the indication that it is somehow anxiety related. It doesn't go away totally, however it does seem to help. I guess that's good news? Of course, I don't want to keep having to take Xanax just to function without dizziness.Joanne
 
Hi Joanne,You know what yes the neuro has cancelled and thrown a spanner in the works, but you will get to see him sooner rather than later. If I was you try and think that anxiety is creating this problem, even if it isn't. Take the Xanax for the short term. Try to calm down. It will make a difference. You know my mental thinking for myself is that anxiety has created my problems (who knows maybe it hasn't) but I now feel an improvement in myself. I'm not entirely anxiety free but gone is the vibrating, buzzing, pins and needles sensations. The twitching has reduced, it's still there but when it happens I do some deep breathing to try and reduce my anxiety. I know follow the principles of this particular anxiety website and understand that once you get your anxiety under control your symptoms don't just disappear. They gradually start to settle down. Well I've been working on it for the past month, along with the support of my psychiatrist and am getting results. Do I feel like my normal self? No but I feel so much better. So I want you to really try hard to think in your mind that anxiety is doing this to you. You've nothing to lose but a lot to gain. You won't feel like this forever. Your life will turn around and your normal self will come back. Try hard to think of positive thoughts. My positive thoughts are with you.Take careMaria
 
i agree. I certainly do not want to minimize what you are feeling, but what is the downside of saying 'it's nothing really serious, it's all of this anxiety that i've got going on". blame it on something else for a while. you may feel that "why should I credit anxiety when something more serious is likely going on", but it could be "why did I pick one of the nasties, when i could have put my fears into anxiety". (Not to minimize anxiety, because that's not good either) You need to get off of this train. You don't want to be like this in Aruba. It's tough to jump, but what do you have to lose? I think I would also stay on the xanax, get over the hump (or mountain). I hope you will have a better day today. i'll check in on you again later.
 
Know the feeling well, you wait desperately and try to hand on to your sanity in the meantime, and just as it is getting near it is cancelled.Still it is better than actually turning up at the hospital to find that it is cancelled.
 
Joanne,I am SOOOO sorry to hear that your appt got cancelled. I was sure this was going to happen to me too...I almost feel guilty that mine went ahead and yours didn't!! I can't even imagine how I would have coped if I had to wait another couple weeks.I guess the only advice I have is this: 1)I knew deep down that I would "pass" the clinical exam (b/c I have not lost strength and don't have atrophy, and can walk OK, etc); 2) Therefore, I knew that I would get the "you don't have ALS" statement from the doc; 3)It would then be up to me to make of that what I will. I did, and am now moving on. I suspect you know that this will be how it goes (it has for everyone else here on this board).Try to keep this in mind, and start thinking of how you will handle the positive news when you eventually get it. I have found that doing this is one mighty test of my mental strength and will.Have a great trip to Aruba. I know it is hard to fully enjoy a holiday when your mind is 100% focused on this thing. I went to the South Island of NZ in January whilst in the depths of despair, but managed to force myself to have a good time...hopefully you will too :D) All the best,Chris
 

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