Hi~~
I just wanted to mention that I get this also. It's on the bottom of my feet alot, but I also get it elsewhere. It's weird, it seems like everytime someone on here posts about something they're nervous about, I've been getting that very same thing. And, you know how this is, later on, it'll be something else. And, I'm with you, even though I get reassurance from my neuro, it seems like it doesn't matter at all. Since I've been to my neuro last Thursday, in fact, I've been having weird tongue feelings, like twitching there, and I've really had the buzzing thing, both under my feet, and on the back of my knees. The problem with the back of my knees is that I can't look closely at it to see what it is. And, I'm not going to ask anyone to do that, cause the only people I'd be comfortable enough to ask would be my immediate family, and they are sick of me talking and worrying about these symptoms. I'm sure it's fine twitching, though. It feels like it, and obviously I'm getting that everywhere else.
If this is BFS, it's just so annoying how each day brings something new. Today, I was at the track with my daughter, and I walked a little, and when I was done, I was sitting in the bleachers waiting for her, and I could feel a thump--thump sort of at the top of my arm, kind of on the inside, and it was making my ring finger on the left hand go up and down with it. It was scary while it was happening, just for a couple minutes. Then, went away.
But, just to let you know, I'm having the buzzing really bad on the back of my left knee right now as I type this. I actually wanted to ask on here if anyone has had that. Since you posted it, I thought I would just respond on here. I also am wondering if this can be part of BFS. I worry like you do that this is more indicitive of ALS, but you certainly have had your symptoms for a long time, and that should be reassuring for you. I'm going on just over seven months. I don't know if time helps or not, I think no matter what, this is a very distressing syndrome, and for me at least, it is on my mind each day, because there is always some weird sensation or twitching going on somewhere. Get this~~last night we were in the city watching a play for my son's birthday, and I swear, it was the weirdest feeling, it was like my chin got tingley for a second, and then the only way I can describe it, is like one giant twitch that seemed to originate from my forehead area, and just felt like my whole face twitched. It actually made me jump a little in my seat. And, that was it, I didn't have it again.
The other thing I'm disturbed about lately is my speech issues. I feel like I have some difficulty talking correctly, but nobody around me notices it. Also, with the tongue twitching I've been having, that makes me nervous. I also notice that I've been biting my tongue more. All things that make me worry this is some neurological thing. Is BFS considered neurological?
Anyway, good luck to you, what you are having seems to be a common symptom on here~don't worry! Val
