FabulousOne
Well-known member
Hi there,
A new theory has come to my mind. I will try to expose it simply, as far as my poor english skills allow me to do so.
Most of us have a pretty accurate idea of the date when we first twitched. But are we right ? I mean, what does "the first time" mean ? The first time we noticed it ? The first time we really noticed it ? The first time we typed "fasciculations" on google and went across all this terrible als stuff ?
I ask the question, because I recently realized I've been twitching for much longer than what I imagined. Only it didn't matter. Only it was not as frequent and regular as it is today. We all know around us people who occasionaly twitch - and who don't give a care. But we are trapped in a world of illusions and false fears.
I know it's not the case for everbody here, but I still think that, for must of us, the starting point was the day we realized we could have als. We still can, as everybody else. In a paradoxal way, we have used this starting point as mean to reassure ourselves, thinking, ok, I've been twitching for X months now without any weakness, which means I'll be safe in (13.5 - X) months.
I think maybe we're wrong. Maybe our "starting point" is much more ancient, therefore our predictions are irrevelant.
Ok, there may be phsyical explanations to what we are experiencing. We're not sleeping well. We're not drinking enough. We're way, way too anxious. But, come on, even my neuro told me that 50% of her fellow students had fasciculations at the time the studied als in class.
What I mean is : well, we should probably forget all about this "13.5 months without weakness and you're fine" statistics because we are ALREADY fine. It's just that we have gained access to a kwnoledge that, maybe, we weren't strong enough to cope with. Haven't you noticed that, most of the times, when you try to talk about als to people who don't even know what it is, they just don't understand what you're talking about ? That's because the fear is not in them. Now we have no choice. We have to know the fear, we have to confront it, we have to sink to the bottom - to be normal again.
We are living in a parallel universe, when every statistic makes sense, every word can be misinterpreted, every new symptom is a source of anxiety. We have to get back in the real universe and enjoy our lives. I know, while writing these lines, that I am almost completly unable to do it. But I try. And I'll keep trying again and again, 'til I succeed. And this site greatly helps. You people are so nice.
Fabrice
A new theory has come to my mind. I will try to expose it simply, as far as my poor english skills allow me to do so.
Most of us have a pretty accurate idea of the date when we first twitched. But are we right ? I mean, what does "the first time" mean ? The first time we noticed it ? The first time we really noticed it ? The first time we typed "fasciculations" on google and went across all this terrible als stuff ?
I ask the question, because I recently realized I've been twitching for much longer than what I imagined. Only it didn't matter. Only it was not as frequent and regular as it is today. We all know around us people who occasionaly twitch - and who don't give a care. But we are trapped in a world of illusions and false fears.
I know it's not the case for everbody here, but I still think that, for must of us, the starting point was the day we realized we could have als. We still can, as everybody else. In a paradoxal way, we have used this starting point as mean to reassure ourselves, thinking, ok, I've been twitching for X months now without any weakness, which means I'll be safe in (13.5 - X) months.
I think maybe we're wrong. Maybe our "starting point" is much more ancient, therefore our predictions are irrevelant.
Ok, there may be phsyical explanations to what we are experiencing. We're not sleeping well. We're not drinking enough. We're way, way too anxious. But, come on, even my neuro told me that 50% of her fellow students had fasciculations at the time the studied als in class.
What I mean is : well, we should probably forget all about this "13.5 months without weakness and you're fine" statistics because we are ALREADY fine. It's just that we have gained access to a kwnoledge that, maybe, we weren't strong enough to cope with. Haven't you noticed that, most of the times, when you try to talk about als to people who don't even know what it is, they just don't understand what you're talking about ? That's because the fear is not in them. Now we have no choice. We have to know the fear, we have to confront it, we have to sink to the bottom - to be normal again.
We are living in a parallel universe, when every statistic makes sense, every word can be misinterpreted, every new symptom is a source of anxiety. We have to get back in the real universe and enjoy our lives. I know, while writing these lines, that I am almost completly unable to do it. But I try. And I'll keep trying again and again, 'til I succeed. And this site greatly helps. You people are so nice.
Fabrice