Oh - and when i see the headline, I have to state the following:No one ever die of BFS - its benign in nature. The questions asked should be:Has anyone with ALS been misdiagnosed with BFS? (And THEN died).No one ever reported back on this site, so I guess that its assuring. (But its ofcourse hard to report back when u r dead - except for me and mariomangler, that is, hoho).