Dealing With Increased Twitching and Hotspots

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karliname

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Lately my twitching has gotten more frequent than it was, I dot know what has changed I am still on my paleo diet and have not changed any supplements. But I feel like I've been getting more hotspots for about 3 weeks. It sucks because they were almost gone for 2 months in a row. I'm about ready to give up. I feel like there is nothing that can help. I'm so depressed about having taken a step back. I had a bad twitch in my leg last night that woke me up. And stayed for about 4 hours, so I didn't get much sleep last night which didn't help.
 
One of the things you have to accept when you have BFS is that your twitches aren't "bad". They aren't your enemy. They are going to come and go based on whatever the hell makes them come and go, and you have really have very little chance to 100% stop them. You just sort of have to make peace with that and turn your body over to them. Once you do that, you really won't care so much and then of course the vicious cycle of adrenaline = twitches will end. And then they will die down and hardly even be noticeable anymore.That is really the key to BFS from my experience. Stop treating your twitches as the enemy. They aren't your enemy. They aren't "bad". They are meaningless. No twitch means anything more than "I am twitching right now." In the grand scheme of things it makes as much sense to worry about twitches as it does to worry about the fact that you have blue eyes. That is the attitude you have to take. Because like it or not, you are going to twitch for a while. It is always your choice how you are going to respond to that.
 
I know what your going through it's not easy and we all suffer set back Right now I feel like I have no energy and I'm weak and no energy I agree with the above comments Hang in there
 
Adamk,Listen to Marios sage advice above. Your current mindset will not serve you well in dealing with BFS. In fact, I think it was critical for me to accept and make peace with the symptoms in order for me to overcome them, as ironic as that may sound. Recovering or even improving requires harmony and leaving your state of happiness dependent on things outside of your control will always put your peace of mind outside of your control as well. My BFS I believe was equally due to the leaky gut condition but ALSO to my method of dealing with anxiety. Here's the thing with leaky gut though, because it causes the immune system to go autoimmune foods are not the only contributor to inflammation. I even had to switch laundry detergents because I developed an allergic reaction to the kind my wife had always bought. The symptom I developed in response to the old detergent in my clothes? Increased anxiety and twitching. I went through a similar setback to what you are going through now at that time. I was looking at my diet and saying WTF? Why am I twitching more? Thankfully I had a good doc that helped me figure out my trigger. I have no idea what yours may be, but you can't just manage your diet and expect this to go away. Leaky gut requires some additional steps to help recover and everyone is different. Did you ever find a doc that knows more about it? Hang in there buddy. Still, listen to Mario and come to peace with this or you'll just make it harder on yourself...
 
It is so hard for me to accept,, I really want to be able to though, I am a cronic worrier and always have been so it's not something I can early change. I had a really good day today at least and had zero twitching until about 10 pm when a few jiggles here and there happened in y back and leg. I don't know about you guys but my twitches are not constraint and maybe it makes them feel all the worse when they happen. They are usually random, I agree with all the advice you both have I really do need to get controll of my worried state of mind and I honestly feel like I have fewer symptoms when I changed my diet but I never got rid of the worries. I have pretty bad OCD and it gets worse when I'm stressed. That has always been a contributor to my stress levels and anxiety but I have a very hard time letting go of things and can't stand it when things are out of control. My main comfort in life actually used to be that at least I have my health, even if other stuff was going bad. Now I don't have that. I'm about 9 months into my bfs and I don't know how long it takes people to feel ok with it. I still haven't found a dr yet. I can't afford it because I just bought a house and that sucked up all my money. I'm hoping. To be Able to in a month or so.
 
One of the only things we really have control over in our lives is our attitude. Just about everything else can be dependent on the actions of others or fate, etc. Realize this and stop trying to control things you can't or you will drive yourself insane. Please take a moment to really think about this: It is never a situation that causes us unhappiness. It is our thoughts and attitude towards the situation that cause our unhappiness.This is why there is so much 'age old' wisdom passed down about finding inner peace or true happiness comes from within. There is much truth to that because your attitude comes from you and nobody or nothing else. It is all generated by you. It may be that you have lived your life up until this point a constant worrier. That is not a permanent condition. There are tools, techniques, and methods to help people overcome their negative attitudes and thinking habits. Nobody can fix that for you though. You have to decide to make a change and you have to take action to do so. We will help encourage you and give advice, but the work is yours to do, as you are the one who will benefit from it. The mind is a vast and powerful thing. Understanding the way it works will help you make changes. One thing to understand up front is that everything in the mind is gradual. You can't flip from unhappy to happy just be deciding to do so. It will be a gradual process to change the way you think. It CAN be done though. Slow and steady wins the race. Maintain focus on the prize. Don't beat yourself up when you fall down. Eyes on the prize... And always keep in mind that your attitude is your choice and it sets the tone for the entire unfolding of your experience. Start trying to look for things that you are grateful for and focus on them. Hang in there.
 
I don't see anything concerning with your comments I wish I only twitched that much as you do. I basically twitch 24/7 Given that you have OCD (an I know that well because I have a relative that has OCD) I suggest you borrow the money somewhere anywhere and get yourself into a Nero. Not because I think there anything wrong but because your OCD is much more concerning than your twitching Perhaps that and only that will calm you down
 
First, I want to thank Secret Agent Man for his inspiring posts. I'm glad to hear that he is better, yet comes back here to help us. I too have found diet to be a significant factor in my situation. I started the twitching months before i realized that I also had a digestive issue. Like all here, I went to a neurologist and had all of the various testing, only to be told that I had Benign Fasciculations. I battled extreme anxiety. It was about a full year after I started the twitching that I started with regular stomach cramps. I had gas and bloating for years, and just ignored it. I see a gastroenterologist and tell him of my symptoms. I also advise him that I have found that It's not as bad if I stay away from glutens. I already had a blood test for Celiac disease through my Primary Physician, and that was negative. Long story short, I get a colonoscopy, and it is declared that I have Irritable Bowel Syndrome. I am dismissed with advise to use probiotics and see him in 5 years for another colonoscopy. Like everyone else here, I spend hours searching the net and here on communitys because I want an answer. Well, after two years, I do know that I am still twitching, but not as much. I actually have a few hour breaks when I don't feel or notice the twitching. My anxiety is also now more in check. Why? well for me at least, I do believe that diet is a big factor. When I eliminated the Glutens, I saw some relief in twitching, but much more with the stomach issues. Somewhere along the way I stumbled upon Leaky Gut Syndrome and Candida. Apparently, leaky gut (typically caused by Candida, basically a fungal infection) allows food particles to escape into your blood stream. Your body sees these particles as an enemy, and launches an immune system response. Anytime your body is fighting a cold, virus, etc. there is increased stress and anxiety. Taking advice from Secret Agent Man, I decided a week of eliminating not only glutens, but also eliminating dairy, sugar, legumes (peanuts and anything soy) and all grains. I have to say, after about a week, thats when the twitching at least slowed down enough to help get my anxiety under control. I have also found that prayer and especially continuous positive affirmations to be VERY helpful. I am continueing down this path of getting my digestive problems corrected, and i am quite sure that most or all of my twitching will eventually fade away. I do realize that many here may not have digestion issues that contributed greatly to their twitching. But if even one person reads this, or Secret Agent Man's posts and find some help, it was well worth the time.
 
I had a good solid 6 days with almost no twitching. Then I had a sleepless night and took a larger dose of ambien and next day my twitching was back again, it's stuck around for a few days so far but I know it will go away. I have been really trying to stay positive, it's super hard to. The negative thoughts and emotions are very strong and I feel sometimes like all hope of regaining happiness is lost. So each time I gather my courage and keep on going. It's exhausting and endless but it's all I can do. I really wish doctors would recognize how much suffering is caused by this and try to find a way to help. Problem is no one even knows about people like us. I don't know if I will every regain that peace that I used to feel before all the problems. I miss being able to have a beer now and then and relax with friends. I miss weight lifting like I used to do. I miss eating normal food without worring about the conciquences. I have had to adjust so many factors in my life around this illness that I am not even the same person I was. I have prayed as I'm sure most of you do, but I have not found much reassurance or peace from it. I have often wondered if this is ment to make me a better person through suffering or if it's some kind of Devine punishment for things I have done wrong in the past. Either way it gives me little comfort or peace of mind. My wife and I are devout Christians but this has really tested my faith. I'm at least glad I found this web site. This group is the only place I feel like I'm understood. Others in life can't possibly know how difficult it is to manage this. So thank you for those of you who take time to give support. I hope we can all beat this one day.
 

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