Conquering BFS/Anxiety in 2009

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InkedMama

Well-known member
Hope all is well in 2009, I made a commitment to not lose my new year to bfs and I hope I am going to conquer it and move forward. I cant write on here what all I've lost due to BFS/Anxiety but trust me its more than most of you can phathom. Lately my issue has been weak legs- Seems like one week it was my left leg, then both, then past few days my right leg. Ofcourse I do the silly little strength tests on my right leg which wears it out more. My tongue has also had the "electrical" zap feeling to it lately. Again, let me reinnterate how much STRESS I have been under. I dont feel there is clinical weakness as I can run up 3 flights of stares skipping a few to get up them faster etc. heel and toe walking fine etc. Just the "feeling" of weakness. I am a year and a month into this. I should be over it. Clean EMG and Clinical. Just had strength in my legs tested right before Christmas TWICE and my Reflexes TWICE all perfect and equal. If it was effecting my legs I would assume something would be off if ***. Anyhow..just need a boost. Hope all is well. Oh yeah my blood test , potassium was low and Im anemic. I am working on that as well.Warm Regards, LovelyI think back though and its always transient weakness- started out left arm shoulder a year ago- thats gone, then left hand hurt and cramped , thats gone- now my legs are doing their thing..Im waiting to say "thats gone" although today my right leg feels find my tongue just feels WEIRD.
 
Dee - Well here I am again, but as you know it is just BFS, and BFS affects our minds. You and I have almost the exact same symptoms, I, too, have the one-sided weakness, but mine is always the left side. I also have had the tongue thing going on for a few weeks too, but I went to the *** doctor - and you know it is nothing! Today, I did the Wii Fitness for 45 minutes, the strength exercises, some aerobics. Then I proceeded to do the treadmill for 45 minutes. I am twitching and feel like H***! But I keep on going and I try to ignore all of the twitching and horrible side affects I have!Love you DEE!K-joy
 
Hey Karin, so good to see you. How are you doing? I am still twitching, but less than before. My major complaint is still muscle pain. I am thinking again I must have fibormyalgia as it has gotten worse with the cold weather. The Vit D has helped me considerably and I was almost symptom free up until Nov. Then the weather changed and i got stiff and achey again. ugh.Linda
 
Hi Linda!!!!I am sorry to hear that you are not doing very well either! I have been thorugh H*** and then some, but I am hanging in there! How is your Thyroid doing? I have not had mine checked in awhile, I was seeing my Family Doctor, because I hate Endoncronologists now, after what I have been through. Unfortunately, I got the bad news that she passed away right after Thanksgiving, she was only 44, and I loved her dearly, she is the only Doctor who has helped me through this whole ordeal (maybe that is why the twitching has gone wild)! So I have not had the thyroid or Vitamin D checked in awhile. I just can't bring myself to see another Doctor who is going to scare the crap out of me again. I went back to the *** doctor, I was taking Klonopin, and started to get dizzy and felt horrible so I went off of it abruptly, and my tongue started to twitch and feel strange. So, I went to see her in August, she basically talked to me for over an hour, and told me to start Yoga, drink green tea to help with the stress and anxiety. The tongue symptoms were from stopping the Klonopin, and not gradually weining off of them! I just cant take any meds, I am way too sensitive. With that in mind, I keep telling myself if there was something wrong with me - she would know. She told me to come back whenever I want - she says I make her day when I am on her schedule, I remind her of herself - YES everyone, she is the head of the ALS clinic and, she, too, twitches and has had every symptom we have had, she never had an EMG because she was too chicken. Love ya!Karin
 
Hi Karin, sorry to hear about the loss of your doctor. At age 44, what happened?My thyroid is acutally stable. My TSh is at 2.45 and my free t4 is 1.60 Range (.61-1.79). My Vit D levels are up to 48.5 with 55 being ideal for me. I am still supplementing. Aug-November I was doing really well...almost normal. But, now the muscle pains are back. I pretty much ignore the twitching. lol. If i could ditch the pain, I'd be happy :)Linda
 
Thank yall in responding. I think I have *beep* a lot of people off on this board by being blunt and straight forward but oh well. :D) Mentally in 2009 besides the HELL I am goinig through "in my LIFE" not the twitches I am doing ok with this bfs. Everything again is soooo transient. I have to remind myself. At the beginning of this and Linda I am sure you remember..my left arm felt weak- that passed. Then it was my tongue- well it was swollen due to pregnancy, dehydration, and anemia/iron problems. That passed. Then it was my left hand. The cramps the pain, that passed...doesnt hurt a bit now..then it was my left leg, that passed, then both, that passed now right leg, that has passed lol Its just a rollercoaster- I've learned just to buckle down and ride the tide.Love yall,Lovely
 
Hi ladies: I've been away for a little while. I hope you all had a good holiday and are ready for a new year. I am just like you, the symptom severity and location waxes and wanes and changes. Some days I still get fearful. Do any of you seem to be worse first thing in the morning? Anyway, I keep thinking, that surely after almost 18 months, I would have some decreased ability - you know - something that would readily tip off the doctors. But, I am still going. I ache and hurt and get the weak feelings, but still going. I am glad to hear that you are all moving on.BlessingsCindy
 
Hi there,I have actually never posted before, but I've been lurking a lot and feel like I know you all. And I can't thank you enough for all of your postings; I probably would have had an absolute breakdown by now if it had not been for this website. I started twitching during the first week of August -- it started right above my left knee and before I knew it, it was everywhere. And, of course, I had all of the other assorted miseries that go with it - muscle aches, buzzing, vibrating, shaking, and then more random muscle aches. My first doctor told me I was stressed and to go take a yoga class. I felt patronized, so I switched doctors. The second doctor was more disturbed than the first (especially when I told her I had twitching and cramping of my stomach muscles), but she also suspected stress. So I self-referred to a neurologist who specializes in EMGs. After my clinical, he said I was strong and that I was probably fine, but he wanted to do the EMG anyway. He did my arms two days before Thanksgiving and my legs the next week. After each limb, he said "Well, that's in the normal range." After he finished, he basically told me to not worry about things, to go home, and that he did not want to do a follow-up, ever. So, I felt better. For about two weeks. And then I thought I started talking funny (and it did not help that my kids kept saying "what?"). But the adults around me did not notice anything (and my kids tend to be somewhat distracted). That continued until this morning, when my leg started twitching above my knee again (it had subsided somewhat for the last 6 weeks) and when I had a fairly sharp, rapid twitch between my left thumb and index finger. Now my speech feels fine, but my left hand gets tired just from holding the phone! I feel like an absolute psycho crazy ridiculous irrational person! But then I go onto this website and discover that there are people just like me and that, chances are, we are all fine (God willing). So, I just wanted to say thank you to you all for your support (although you did not know you were giving it to me). And I wanted to ask, is it always something? When my speech was bothering me, my hands felt fine. Now my hands feel achy, but my talking seems okay. And, have any of you noticed the ebbs and flows being triggered by anything specific? Both when I started and now (when things seem to be more twitchy than they had been for a while), I have had a cold sore following a bug. Last, has anyone's lips been trembly? Mine normally are not, but I sing in my church choir and my lips actually get trembly when I sing a prolonged ooo sound. It kind of freaks me out (actually a lot, but I keep telling myself things would be more noticable after five months if it was bad). Sorry for the length of this post (maybe I should have started a new thread, but this seemed like a good one to use to say thanks).Aleksis
 

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