Confused by Twitching and ALS

[EnlgishBirder]

OMG hopping up 2 flights of stairs on one leg. I'm a failure :crying: I can manage about 8 steps each leg (not holding on to banisters).I know what you mean about the wobbles. My neuro had said I'm fine but I'm still anxious. I shall have to get the cake game Xx

 

[LostLamb]

Hee hee the cake game is great, until you get the pink icing mixed up with the yellow filling, and you put love hearts on top instead of jelly sweets, then it becomes the BAD BAD game, the enemy, (panic....clealy since my last game 10 minutes ago I must have developed UMN damage and cant put things in correct orders), so said game gets flung across the room ( only to be picked up to try again). If the kids knew the secret hell their DS goes through while they are asleep.Seriously I like you have got young childen ( I read most peoples posts evey few days), and it is hell this BFS journey. I worked as an immunologist and thought nothing of handling such awful things as Cholea toxin, salmonella, Herpes viuses, methanol, radiation, and even watching experiments on the prions causing vCJD. My husband worked in hospital on the Anthax cases in Scottish heroin addicts in 2009 ( *beep* what is this we have isolated from this wound kind of work). That was all nothing compared to this anxiety of BFS......aaah getting a wobble....where is the cake game and the water pistol....Helen x

 

[BFSDiner]

Hey English - not sure if anyone said this yet (or if you already know it) but just reading page 1 of this thread ... BFS, for some weird reason, mimicks a ton of different diseases. Perfectly too! That's why its such a mind fk ... honestly. We aren't all basketcases for no reason. We have very good reason at the time its happening. So forgive yourself for being worried. But work on finding a way out of that cycle. BFS is textbook Multiple Sclerosis in some ways (but completely NOT ms in the most important ways), textbook anxiety disorder, textbook post-wasp sting even ... yes! BFS symptoms match symptoms of a wasp stings in some people, ... even snake venom. BFS is textbook primary herpes infection for some people too ... plenty on the herpes forums ranting about our identical symptoms. And that should give you some peace of mind. It sure as sh*t isn't textbook ALS. But it sure as sh*t is textbook symptomology for a hundred other totally harmless syndromes that don't amount to a hill of beans. And to make it even better? I am the crazy b*stard who went and had over 50 blood tests done. I checked everything from Lyme to ALS to MS to excess potassium (also causes BFSlike symtpoms!). All negative. So whatever this is, isn't detectable by a blood test, or its something medicine hasn't identified yet. BFS is the great imitator.