Concerned About Hand Pain/Cramps

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BartOne

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Hi guys, I'm a bit worrying at this moment, my right hand hurts, wrist too also my biceps kind of cramps/'knife pain'. It seems like I can't grab everything that good anymore. Should I worry? I had a clean EMG in the 6th week of twitching. Bart
 
Bart--This is just speculation on my part, but based on my own experience and that of a couple friends, your symptoms sound related tocarpal tunnel rather than anything sinister. However, I didn't have the pain and cramping in the bicep; not sure what that could be--but remember, pain is not a presenting symptom of ***.Again, this is just my opinion based on my own experience with the wonders of carpal tunnel syndrome. Don't worry--you're OK.Mark
 
Hey Bart,You may have carpel tunnel. Bfs messes with our nerves and slows down circulation also. Did you have an NCV with your emg? You are OK. Remember pain is not a symptom of als. Also cramping usally comes later in als. I would guess you are obsessive with your right hand and gripping. When we focus on things all sorts of weird stuff can happen. Try wearing a wrist brace a night for a couple of days and see if that helps.Try to remember that weird stuff used to happen to our bodies before bfs started, we just don't recall that. Eventually I relized that I used to have shoulder problems, knee & back problems, feet nerve stuff, years before bfs and my als scares. Sometimes we blame too much on bfs.DD
 
I also got the pain in biceps and in my upper legs, the feeling if they will go to cramp. Sharp paines. Don't know if that is still part of BFS?
 
No Bart. Wam I was wondering where you are going with this question? It doesn't matter where someone twitches or not. For someone new or amped up the way you structured your question could sound like you had info that it could be worse. Please be careful.Bart. Bfs causes muscle pain all over the body. It does not matter where at all. Sometimes I will wake up with my neck hurting or my back or leg................The good thing and bad thing about bus is the predictable unpredictability of it. Just screwed up nerve impulses.DD
 
Bart~~ It's true about things happening with our bodies before BFS that were something we didn't even pay that much attention to. I've had a painful/weak left hand/finger for a little while now, and I've worried that it's progression, but it's probably unrelated. I asked my neuro about it when I went in this week, and he said it's probably tendonitis, or arthritis. He didn't seem concerned about it at all. It worried me, cause I noticed I couldn't do things that I used to do without thinking about it~~I think the first time I really noticed it making a difference was when I went to pick up a pot of boiling noodles with my left hand, and tried to strain them, and I couldn't use that hand, and had to use my right. Also, it's like I can't pick up the milk carton anymore with the left hand unless I get my pointer finger out of the way, that seems to be the area that is painful. But, it's funny, when I ask my husband about it, he says he gets stuff like that all the time, and hardly thinks about it, just attributes it to getting older, or strain, or whatever. I'm sure if it got alot worse, I would ask about it again, but remember time is on our sides, and each day that it doesn't get alot worse is a good sign. But, regardless, I'm sure yours is not related to anything bad, we all get weird things like that on here, and are hyper-aware of all our symptoms now. Do you notice, after BFS, that NOTHING goes unnoticed now?? I've had weak arms, weak legs, but all things that eventually resolved themselves. My hand is still bothering me, but I had better get used to symptoms like this, because they are all part of the normal part of aging, and doing alot with my hands. I'm sure you're fine~Val
 
Bart,I get a sharp pain in my left bicep. It comes and goes randomly. It doesn't last very long and doesn't happen too often. Sometimes I will get in around my left tricep too. My right quadricep muscle also experiences soreness. I think it's just part of this lovely condition.CDC
 
Bart I have had the same pain you describe in my right hand. It has coem and gone through the years. Well, we know its definitly not ALS. Maybe BCFS like the rest of us?
 
Hi,Today the pain in the hand and arm is better, weird, but know my leg hurts - cramps- and my tongue seems to cramp, is that possible? Is this still all part of BFS? I'm now 7 months into twitching...if it would be *** it would be clear right?B
 
sorry that I'm still panicing but this is another thing that I think is very odd; I got this weird sensations in my face, maybe minor cramping, tigling,..very weird. Does anyone else have this?B
 
Bart... HARD CORE INTERVENTION HERE!!! I came to check my PM's and my Thread. YOU NEED SOME THERAPY. I am not saying this in a mean way...But this is totally ruining and controlling your every thought and move. I really feel sorry for you..You are CLEAR from ALS. What you are dealing with right now is a SEVERE FORM OF ANXIETY AND HYPERCHONDRIA. (I say this with love...because I was headed down that route until I got my EMG).1.) YOUVE HAD MORE THAN ENOUGH TESTS.2.) PAIN IS NOT A SYMPTOM OF ALS3.)MIGRATORY PAIN IS NOT A SYMPTOM OF ALS. (ALS is not a MIGRATORY disease in such a short time span it doesnt just shop around til it finds the muscle it wants)4.)ONCE YOU BEGIN TWITCHING- IT WAS SAID BY MY NEURO, SEANS NEURO, BACKAGAIN,SANDRAS,KARINS, CDCs (als spec) I CAN GO ON AND ON ......of PEOPLE THAT HAVE BEEN TOLD YOU TWITCH IN ALS DUE TO DENERVATION (MUSCLE DYING) IN ALS AND BY THE TIME YOU TWITCH YOU WILL HAVE SOME ONGOING OF THE DISEASE FOR 5-10 MONTHS..THEREFORE WHEN YOU GO YOUR NEURO FOR YOUR FIRST SYMPTOMS IT WILL BE DETECTED ON CLINICAL EXAM AND INDEFINATELY ON YOUR EMG! 5.) YOU ARE ASKING THE SAME QUESTIONS EVERYDAY..THE ANSWERS ARE NOT GOING TO CHANGE BART! YOUR NEUROS HAVE EVEN CUT YOU OFF FROM SEEING YOU..WHAT DOES THAT TELL YOU?? YOU ARE 10000000% FINE.You need to get some help and good support. You wont find what you need on this board at this point. It helps to hear your fine from other people (But none of us are your well known NEUROS and SPECS youve seen) but you really need a semi intervention here. (again i say this with love and care). You say your seeing a therapist? Are you on ANXIETY medications or any SSRI's..it would be WORTH IT for you to talk about taking some.....I hope people dont get mad @ this post to you I am making but I can relate. Only now though..that I've had the test and she explained to me (my neuro, THE CHEIF OF NEUROPHYSIOLOGY, BOARD CERT. OF EMG'S) explained to me..the PATHOLOGY of the disease in DETAIL during my EMG can I now move on. She said NOTHING that I had NOT already heard from people on this board that had seen NEUROS and ALS specs. It was a ECHO! Bart- See if you can NOT come on the board awhile. Focus on getting on the RIGHT MEDICATION for ANXIETY. I know how it is to have horrible anxiety. I've had to go almost 9 months now with NO ANXIETY meds and I suffer from EXTREME Generalized Anxiety Disorder, OCD and Hyperchondria (Diagnosed by a bonified Psychiatrist YES I AM A NUT!!!) :LOL: ... So again I speak truly from the heart I am in no way making light of your situation or getting aggrivated with you. I just think you need to move on Bart. Your losing your life every day w/ this BENIGN disorder due to severe anxiety. You can KEEP ASKING THE SAME QUESTIONS BUT UNTIL YOU GET YOUR ANXIETY AND THOUGHT PATTERN UNDER CONTROL...it won't help.Your in my prayers. Seriously...You can GET AHOLD OF THIS. I hope I havent offended YOU or ANYONE w/ this thread. I just seriously hate to see you suffering like this when you can get it under control. If I can, YOU CAN! Im doing it w/out MEDS! :eek: Its HARD..but it can be done.Lovely(meant nothing by this post...you told me before you liked tough love approach. You've been so reassuring to me yourself..I just want you to see it in yourself and beat this Bart, Truly.)
 
Maarten, (and others)If that is your idea of a joke it is HORRIBLE and WAY over the line. OR if that is your way of some sort of shock therepy or wake up call, it was bad. OR If you really think that way(which I don't) then keep it to yourself! :mad: Maybe this place is getting to me and this is God's way of telling me to go, but I think some sexism is going on here and it has happened before. We seem to give a pass if a woman struggles over and over with these issues but if a guy does, look out he gets lit up. Like I said it has happened before. See Arrigor.P.S. Be careful about dishing out strong advice before we are at least a little farther along in our self assurence. "Those in glass houses"Now it would not be a big loss around here if I left, but people should be careful how they say things before ALL the veterens leave. We just had a mass exodus, I would hate to see another. This forum has to continue. Just look at the numbers, more and more people twitch and find als forums and freak out and come here. This place was a Godsend to me and will be to others. What would happen if there were no veterebs with sound advice left? Who knows maybe I should go. I want to stay and help but I wonder if staying is the right choice.Bart buddy you really are OK. Try to trust your neuros and your clean emg's. Eventually you will conquer this thing. Take careDD
 
I figured my post might cause a stir. I think this is Gods way of telling me to Si Anora- Post like MAARTEN light me up and its NOT WORTH IT!Bye!
 
HI BartRight now it is the middle of the night in Belgium and I wanted to leave a message for you when you get up. You know how worried I was about my neuro appointment and how relieved to hear "no ***"". I thought that would be the end of it but this has been such a worry for so long that again little doubts began creeping into my mind. The day after the appointment my legs were so tired and achy I could barely walk. My twitching returned stronger than ever. When I thought about it I realized I've been hardly eating these past few weeks. Maybe that had something to do with my weakness. I bought some Ensure liquid meal replacement and had one last night. Today my legs felt much better and I was not as dizzy.When we're so worried about our health, every little thing is magnified a hundred times. I get pains in my arms and legs all the time by the way. But as an example, yesterday in my car, I was looking at my hand on the steering wheel and I saw it twitching constantly and I couldn't even feel the twitches. I was really freaked out. Then I realized what I was seeing was the vibration on my hand from the car motor. I was also very worried about my hands because I think they look wrinkled and withered. But I'm 56, maybe that's normal. I actually looked at other people's hands at work today. I told them I wanted to see how wearing gloves protected their hands compared to mine. (I don't wear gloves). My hands may have been a little worse (drier) but the other people had wrinkles too.I think you've gotten yourself into that frame of mind where you are focusing on your physical feelings and noticing every ache and pain much more than you normally would. And even if you have arm and leg pain, there are many other things that could cause it besides the thing we all fear. You have been cleared for that . You don't have it according to at least two good neurologists in Belgium. As to the twitching, it can definitely be made worse by stress. I twitch a lot more during and immediately after giving my 16 year old a driving lesson! I know it's hard to turn down the stress, but at least make sure you are eating and sleeping properly and try to get some relaxation in there this week-end.All the best,Sandra D
 

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