Common Struggles with Pain

Supabro

Member
Your story is one very familiar to those of us on the board. I'll hit yoru questions in order:

1. Pinched nerves, disc problems, old injuries that are aggravated can cause all of the symptoms that you are experiencing.

2. Read the excellent "BFS in a Nutshell". I think you'll agree at the end of it that you do not have ***. In addition, *** symptoms do not present with sudden onset, and are rarely bilateral.

3. Pain and cramping can be anywhere. Not everyone experiences cramping, but almost everyone who receives a diagnosis of BFS experiences pain of vary degrees and in varying places. The pain is often accompanied by perceived muscle weakness and fatigue, either localized or generalized.

4. You are not dying from BFS or the symptoms you describe.

5. The neurologist should do an exam which is more detailed than the one your GP gave you, including looking for examples of hyper-reflexia. The neuro will be looking for objective clinical weakness, not your perceptions of weakness (Again, BFS in a Nutshell explains the difference). Ask the neuro to explain to you how you can have fasciculations without weakness. Be sure to mention the pre-existing back conditions.

6. I can't give you a professional opinion. I can tell you a personal story in that I had some numbness, which turned into twitching, which led to symptom Googling, which led to massive anxiety and an exponential increase in twitching. I had numerous MRIs and two EMGs (due to possible bad results on the first one) before I was diagnosed with BFS. My twitching is still there, but my anxiety levels are reduced 90% and I just accept that fact that some days there minor twitching and some days lots of twitching (and always increased twitching after working out).

Best of luck. The first read on the description of your symptoms leads me to believe that you will receive a managable diagnosis, like almost everyone else on this board.
 
als does not present with widespread fasciculations at onset. There are several cases on this board whereby people have exerted themselves like crazy through exercise and then developed bfs. There seems to be a link between heavy exercise and this illness. You will learn that you are not going to die and that all is going to be fine. Trust in it as that is the case.

Mark
 
Hi,

your story sounds similar to mine. My calf started going 24/7 4 months ago after a long bike ride and also random twitches else where. I to have a history of back problems but like yourself I was terrified by the thought of this being nasty.
To cut a long story short I saw a neuro and had an EMG and the results were that my constant fasciculations are due to a back injury pinching the S1 nerve but because there is no pain associated with it no further action was taken.
From what you describe I would say that the pinched nerve is the most likely cause.

Pete
 
thanks for the encouragement. of course until I googled twitching i may not have ever worried about the twitching at least.

these days the pain (not terrible) but enough to notice if you will like last night at a party, i really had to think shoudl I dance or not. i did and today i am very stiff. and just seems so odd ot me that one week i am fine and the next here I am a a month and half later.

but the pain and cramping is worying me a bit more. and those random pins and needles, electric type feelings which many here seem to feel as well.

i keep thinking, be positive, if Nuero says OK its benign then what, do you go to an arthirits guy, an allergist, where do you stop and say enough is enough?

and then of course i don't know if other do this, i start to link things in my mind like maybe this related to the headache and maybe that random pimple is related to an underlying disease and then now i am seeing this.

and at 32 and realtively healthy I feel like it is odder but apparently not.

thanks again
 
I too have the leg cramping and paresthesia that comes and goes. I too have a disc problem L5S1. This has been going on since January for me. I have good and bad days. The klonopin helps. Cramping in the calves at night with fasciculations. heating pad can help. Hang in there. You will be ok. Quit googling...I did and it helps!
Beth
 
Even after nearly a year, my calves usually go crazy after working out. They always twitch but it's hard to ignore it after exercise.

Your onset was very similar to mine. Wacky stuff but you do get used to it over time :D)
 

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