Checking In: Constant Dizziness/Vertigo

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handjadensmith

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Greetings All:Just checking in again for some info. This board is such a resource. I am having a major episode (one week and counting) of constant dizziness/episodic vertigo and internal shakiness. I have low blood sugar like episodes, but I do not have low blood sugar and food/drink does not help. I have had these episodes before and basically I live with milder versions of them as typical background noise during my normal day to day life. I have been examined up and down for the dizziness since year 2000, and the twitching since year 2005. As it stands I am a bona fide BFS'er with no other real concerns (in the eyes of the specialists)I do struggle with the symptoms from time to time (like right now). And then of course the symptoms lead to anxiety which leads to more symptoms which becomes a problem for weeks/months at a time.So I am here for some support.And I am here for some thoughts.And I am here for some theories.BFS is long thought to be autoimmune related. I do have a known autoimmune disease, or at least they tell me. I had a mild elevation of antithyroid antibodies a couple of years ago, and a diagnosis of HAshimoto's Thyroiditis came with it. THe "other" known antithyroid antibody was not elevated and my thyroid function has been stable and normal ever since. I had a virus or something going on at the time and my allergy IGA was also elevated which makes me question if I even have this "disease", but I guess I do. Either way, I have an active immune system in terms of the antibodies and the allergies etc.I have read other accounts of people being diagnosed with Thyroiditis/Graves etc. after bouts with the internal tremors. I have also read accounts of others having these tremors for years with no diagnosis ever occourring. So, I ask what do other members of the group think? Has anyone ever tried treating the internal tremor/buzzing with Prednisone or other steroids? How about antihistamines?I think most people here theorize that BFS is immune system dysfunction, but what can we do about it?Best,JJittery
 
Jjittery,I actually posted a question about internal trembling last week on the Questions about BFS board. This is my most significant symptom. I would classify it two ways. My legs feel like they are buzzing or vibrating inside(almost always). However, my arms feel like they are trembling or shaking (not visibly) internally. Sometime it will translate into a slight visible tremor in my hands. So I am feeling something in all four limbs. My doctors are at a loss. I have had several tests which have all been normal. My Neurologists has said from the beginning that he thinks I had/have some sort of virus. My PCP agrees.The only treatment I've tried is Lyrica and Clonzepam. The Lyrica was just for pain which I would get in my legs late in the day due to my muscle constantly being active. The pain wasn't severe but noticeable. I beleive it reduced the pain some but pain was never a serious symptom for me. I wanted the buzzing/vibrating junk to disappear. So, I didn't take that for very long. I think the Clonzepam has had some affect in reducing the interanl tremors in my arms (I think). I only took it for a acouple of weeks back in January but quickly gave up. Again, I was under the impression that I was going to take a pill and my symptoms would go away but they didn't. Anyway, about a week ago the remors/shaking feeling in my arms was really bad. Most notably when I woke up or prior to sleeping. So the past couple of nights I've taken it (Clonzepam) again. My dosage is only .25mgs. Amazingly, the last few nights and mornings I haven't noticed them. I'm not sure if this is due to the drug or not. This is huge for me because this is the first time I've noticed any symptoms subside since the onset in September 2007.I've also noticed that the buzzing/vibrating feeling in my legs hasn't been as bad in the morning either.I don't really have a theory I just wish it would go away. My symptoms began soon after I started a pretty strenous cardiovascular excercise program. I honestly don't know if the two are related though.Let's keep hoping.CDC
 
Hi Bud.There is some good info on(http,www. pnhe info) about meds fo peripheral never hyper excitability (BFS). I take an anticonvusant called gabapentin, and this helps me. I may not be fro everyone, but it helps me cope.take carechris
 
CDC,Thanks for the reply. My internal tremors are a daily occurance, and my external ones come and go. They have been evaluated by a Neuro with no concerns. There are other things to consider/remember. Everyone has tremor, it is normal. In many of us here, this tremor is enhanced. There are daily exacerbators such as exercise, caffeine and stress/anxiety. IT is not much of a surprise that my external tremor has been witnessed by Neurologists because not many things get me as worked up as a Neuro visit.I keep struggling with the why's as stated in my post but for many of us here it seems to be about immune dysfunction, p nerve hyperexcitability, or some minor post viral CNS/peripheral nerve damage. The collaberative thoughts on this board are always a pleasure to read.BTW, my latest diagnosis is Migraine Variant Syndrome.Who knows...JJ
 
Hey Jittery, I have hashimotos too. And I have been twitching for 7 months. Mine started when I went hyperthyroid back in September. Now I am technically hypo and my twitches are better but still there. I have read there is definitely a connection between the twitches and Hashi's. I also get the internal tremors you speak of. I don't know what we can take to relieve them, but I have found that magnesium glycinate supplements at bedtime seem to help me. I keep hoping once I get my thyroid levels stabilized the twitches will subside even more. Hang in there.Linda
 
HI Linda,I am apparently very early into the Hashi's. My Thyroid function is fine and I have no nodules or enlargement. But perhaps this could be contributing to my symptoms? The Endo says no, but who really knows...Thanks for the reply.JJ
 
Hey JJ, I am apparently early into the hashi's process too. I was diagnosed in December. But, my TPO level was 911 with <34 being normal. So, all these antibodies in our system can cause a host of symptoms. You sound a lot like me and there are several others here with Hashi's. Muscle fatigue and pain are both symptoms of thyroid disease. Have you been over to the thyroid forum? Lots of good info and posters there.Linda
 

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