Calves Twitching 24/7

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octavia031

Well-known member
Hi me again :(When reading other posts it seems that most people here of twitches here and there, a couple every day. In my case it's my calves that really twitch all the time. I've read that some people say they twitch 24/7, but when I mean 24/7, I mean that my calves go all the time, every second of the day, just every second and at several places in the calves, if I put my leg up I see it moving all the time. Are there people here who have those kind of non stop twitching too? It would really help if someone has this too.Please , thank you
 
:D)Sorry, but you probably read another forum :)) A lot of people here have 24/7 twitching in calves, its the most common place I would say. Really, thats nothing exceptional here, I have 24/7 in my feet, if it helps :)
 
123LostSoul456,Yes, I have this 24/7. And while it decreases with Tegretol it doesn't go away.Yeah there are people who twitch a few times a day who are on this board. But I say these are 'normal' people who are just scared.The rest of us have the same, or similar condition, as you.-43RichyThe43rd
 
Thanks 43RichyThe43rd,That was what I was thinkning, that there are a lot of people here who don't have BFS but the 'natural' now and than twitches. I know a lot of people that have a couple of twitches a day, you can hardly call that a syndrome. I think you can call it a syndrome if it goes on and on every minute of the day , like mine, although I stay scared it could be ALS
 
Okay first of all twitching is a symptom.MY CALVES AND FOREARMS TWITCH 24/7 ALSO A few questions. Do your legs look normal what i mean is that i have other symptoms as well as non stop twitching. I have very thin lower legs. also i have no lower leg strength. I cant stand on my toes at all. At first the docs thought it was all anxiety util i started to mention these other symptoms. The first thing that lead doc to believe there was something going on was a blood test. They check your CPK levels in your blood. If the levels are high that means there is somwthing going on with your muscles. In my case after testss after test mostly EMG and so on i wasfirst diagnosed ith CMT but now they say i have Spinal Disatl Muscular Atrophy. But mind you if you have normal looking legs and strength then it might just be BFS but if there is any other symptoms there then u need toget it checked out. Yes i was checked for ALS but definitely not 99 percent sure and what i have isnt fatal either just a bit debilitating and very annoying but this twitching thing sucks and the really only relief i get is from drugs and i refuse to take them so i suffer from the twitching it really sucks i feel for you
 
Hi 123LostSoul456,I also have 24/7 twitching in my left calf, both neuro and doc put this down to an earlier back problem although im not 100% convinced of that. However there are several people on this site with this problem and all have had the all clear from the neuro (chris springs to mind).The more you worry about it the worse it seems to get, over the Xmas period it has spread to the back of my knee and thigh!Best wishes to all for 2009Nige
 
mr PizzWhen you say you have nonstop twitching in yout calf, is it as bad as mine? (i assume you have seen my youtube video, if not just search for chrisnewton33)i seem to get the feeling that mine is so bad that i am the bench mark so to speak.Chris
 
Hi Chris,To answer your question yes, i would say my left calf is like yours. As you said in a previous post when you lift your leg into the air it goes mad, mine can twitch in 4 different places at the same time! I have had this now for 10 months without a minute off, its driving me insane, however, i am starting to accept the fact i don't have ALS and so should you. There are several people on this site who have the exact same symptoms as we have for years, both myself and you have been given the all clear by our GP's, neuro's and have had clean EMG.As i have said in previous posts, we have to accept what the professinals are telling us, there is NOBODY on this forum more qualified to give you a correct diagnosis that them.Have you suffered any back injury, that is what the Dr and neuro think is causing my twitching? I have to say i'm not totally convinced of this and think mine has been brought on by stress caused by work, home ect.I'm going to visit this site far less this year because i don't think it is helpful to continually be dwelling on this, the day i don't wake up and this is the first thing on my mind will be the first day towards recovery.Chris if you want to mail me or call i think my details are avalible through my profile.All the bestNige
 
Nigel. question for you. Not sure if you will see this as I am resurrecting an old post.You said your twitching spread to to behind your knee and thigh. Mine has as well and this worries me a bit.It is basically constant on the lateral part of my left leg. Its creepy looking on the thigh. Its at least two or three spots on the thingh and they seem to be slower twitches.Also behind the knee which is very annoying, but these are a little faster.I know this is an old post, but I was curious if this part got better.I have accepted my calves will continue to go 24/7 until I die, and I guess I can live with that, but the thigh and hamstring are more worrisome to me.Would love to hear some follow up from you on thisKeith
 
For some, not all, it could be related to your spine. The emg will not pick that part up. Did you guys get an MRI of your spine? Try having someone massage your back esp lower back... could be nerve entrapment and your muscles may be too tight.
 
Keith,The first symptom that really stood out to me when this all started 16 months ago was a twitch behind my knee that did not stop while I was standing in line at a bank. I still get this on and off and sometimes when it starts it lasts awhile. Still no weakness. The sensation has happened in both legs. I have twitching bodywide and so cannot attribute it to the spine. I had a spine, brain, and neck MRI. I have a herniated disk in my lumbar spine but the spine ortho said it had nothing to do with my symptoms given its nature and the fact that my symptoms came all at once and again are bodywide (head to toe).Krackersones
 
Bilateral calf and foot twitching in my case 24/7 - have just got used to it. It's my thumb that bothers me... see separate post.I'd be inclined not to worry about calf twitching which is I believe the commonest site affected by BFSRegards, Simon
 
Hi KeithSorry - I had misread that which was bugging you the most, i.e. it is actually the site of the twitching that irks you as much as its relentlessness. Having reread the thread, I think I am right in saying that it is worriesome to you in terms of re-activating your fear of a dread disease like MND/ ALS, rather than worriesome in terms of being simply fed up of this particular benign twitch. If so, you will note that I have just posted a parallel topic about my thumb, describing my illogical belief that the fasciculation in this one particular body site is going to herald the 'beginning of the end' of life as I know it. I guess we are equally illogical in this belief but I can attest to just how real this illogical fear is. If it is any comfort, when I went to the neurologist in August to discuss my last EMG, which showed denervation/ reinervation in my L quads, she told me that of the many hundreds of MND/ ALS cases she had seen, the upper leg had never once been the starting point (i.e. quads in my case/ hamstrings in your case) although this had been described as an incredibly rare occurence in the MND literature. Limb onset MND is much more likely to present peripherally - i.e. hands (weak grip, dropping things...) / lower legs (foot drop, trippling...). So, in terms of its location, I think your current fasciculation is in a place that is by far moe likely to be of a benign nature than not. Hope this helps. II wish I could apply the same logic about my wretched thumb which has been hard out twitching for several weeks and is, after all, a more peripheral location.All the bestSimon
 
I should add that my neuro who has treated ALS patients since the 1950s says he has never seen an ALS patient whose symptoms began with sudden onset bodywide twitching. So the more places you twitch without weakness, the less likely it is ALS.
 
Simon,thank you for posting your neuros statement!! As i have a lot of twitching (hamstring too) and intermittent perceived weakness in my right upper leg it is very reassuring for me to read that!
 
Thanks Simon.I appreciate the input and thanks for sharing your neuro's input.It is illogical, but nonetheless I still perseverate. I actually have left quad and hamstring, as two seperate involved areas. hamstring is definitely more annoying- it feels really weird. The Quad looks scarier as it is this slower twitch that comes every few seconds.This one has me worrying a bit, butI do find some reassurance in the idea that it would be rare top begin with the quads.Thanks again. I appreciate itKeith
 

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