Borderline Low Gamma Globulin Levels

[SongbirdLove]

I just had a complete neuro exam up at Yale a few days ago. Everything was "100% clean"...3 hour exam, EMG, blood, etc..

My question. The doctor emailed me back (after i emailed him with follow up questions) and said the blood test was all normal except for borderline low levels of gamma globulin. He said he sees that a lot with BFS people and it's routine to get another blood test and urine test (his secretary will call to make an appointment)
Has anybody here had blood results similar to that?
My hypochondria self is coming out again, yikes.

Thanks,

Mark

 

[PinkNinja25]

I just got my bloodwork results today, mine were all normal. I asked my doc about it and he said he doesn't feel there is a correlattion with BFS. I had a copy of a post about this previously that I took with me. Hope that helps

 

[melyssa221]

gamma globin is not a real detector... they can elevate pretty easily... usually assosiated with liver problems.... but elevated AST and ALT are real detectors of liver problems... i myself have elevated gamma globin and i also have slightly elevated ALT and AST since BFS... and others on here probably have the same thing. my liver has been chronicly inflammed for 2 and a half years now.. same length as my BFS.. my neuro says there can be a cause and effect relationship between liver disfunction and benign fasciculations... not saying you have liver problems.. im sure they did blood work on your liver functions.. but do you have any numbers? liver function test numbers range from doctor to doctor..

 

[SongbirdLove]

I don't know what the numbers are, but the gamma globulin is slightly low.
He did say that he sees that frequently.

Mark

 

[melyssa221]

YES i s do the same regiment everyday... the baths are mostly on the weekdays after a hard days work.. epsom salts and baking soda and valium before dinner and bedtime... really helps... im always drinking the electrolyte enhanced water everyday... i does help keep me on a low frequency of BFS,,, plus the baths are relaxing and remove toxins from the muscle...cant beat that

 

[Diego4Life]

12Drifter12, does your GP prescribe your valium? It is almost impossible to get it on prescription in the UK. Doctors hate prescribing it. When my flare-up started last January, my GP gave me a week's worth and it calmed the twitching down to a very low level, but he wouldn't give me any more saying that it is addictive, so the twitching got worse again. Is it more easily prescibed in the US? Is anyone else taking it?

Cheers,

Diego4Life

 

[melyssa221]

Yes my Gp prescribes it... i just got a good doctor that understands my condition and the agony it causes... he has seen my calves pop like popcorn.. he knows theres no cure but says all we can do is manage the symptoms... valium is an old drug from back in the day for anxiety.. but now they good all these wonderful antidepressants valium has become obsolete. ive taken numerous drugs for BFS all benzodiazapines.. klonopin, valium, xanax, ativan to name a few... i dont see any really addictive qualities in any of them,, maybe except one... which was Ambien. i found that i couldnt sleep without it... it was hard to learn not to sleep without it but i got over it.. yes i agree out of everything i took valium works the best for BFS so far,,, i dont think its as addictive as many doctors today think...and thats the problem.. i can see addictive quailties more in painkillers then some dumb benzo... i donno thats just my opinion. i would go from doctor to doctor till you find the one that will actually listen to you and one that tries to understand what your going through.. and ask for what you feel you need.. and yes its rare to find a doctor to prescribe valium.. i just got lucky... my doctor actully listens to my concerns and he understands i was diagnosed with BFS and its a rare disease...

 

[stevenpaulo]

My GP and neuro have no problem with me using Diazepam providing it's used sensibly i.e not used every day. So I occasionally use it if I'm having a bad day and can get it prescribed whenever I ask for it.

Steve.

 

[totaltwirls]

My neuro has also prescribed Diazepam for me. While the prescribed dosage is 3 5mg tablets a day, while I started out with that at the beginning of everything, I am down to about 1/2 pill during the day and 1 at night which helps me relax and get some sleep, which was my biggest issue. I have a very stressful job so some days it depends on what's happening on whether I take it during the day or not. I find this drug to work much better for me than some of the others prescribed by my GP at the beginning of everything. He initially prescribed Trazodone and one night I woke up and literally felt like my tongue was numb, needless to say it scared the sh** out of me. When I pulled the pamphlet out of my medicine cabinet and read all the side effects (one of which was twitching), I called him the next morning and asked him if he was absolutely nuts. From that point on, went right to my neuro regarding how to handle the anxiety and any meds. Hope to eventually be able to get off them all together, but am just 3 1/2 months into this ordeal and am not quite there yet.