Atrophy in Right Hand Worries Me

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Other people will notice it if I speak long sentences. I will notice on a few words, but they won't. They are all saying that I might be picking up a cold, which I know I'm not, I know when that happens. Or allergies, but I do to have allergy problems and have no other allergy symptoms. I do feel a burn kind of feeling or something squiggling back there from time to time so maybe that is some sort of heartburn/gastritis affecting my throat/voice? I was up all night with this feeling (but it was not really painful, just uncomfortable/noticeable). Still no swallowing or slurring problems, so I am relieved by that. But now I am flying to MN, taking two planes, alone, and next to MND, flying is another huge fear for me. Trying to keep the anxiety down because I know it makes everything worse.Thinking of you, please let us know how you are when you can!!
 
I have second neuro visit tomorrow...I have visible atrophy left calf (full inch), the leg also feels weak, and the twitches there are worse than anywhere else. I am frightened. I'm not young either (49). I can still walk normally but it feels like I have weights strapped to that leg. I've never had cortisone injection before. I'd like to believe that my symptoms are due to c-spine issues, but it's hard. Xina your hand looks normal as does your thumb. No weakness and clean EMG behind you = you are gonna be fine.
 
I am so worried about this hoarse voice. It is getting worse. I can't talk at all without my voice somehow breaking up. I have to cough a lot, but also, after I cough, sometimes I feel nauseous or like something is crawling in the back of my throat. I am just going to try to assume this is something related to GERD or something like that. Funny, my hand, although weak, has been much better today, almost has not bothered me at all. The weak grip is there but not as strong, so another good sign I am trying to keep me sane.The pictures...it's weird and hard to really get the grooves on camera. Everyone I show them to in real life sees them. These were not there 3 months ago. I feel so depressed and scared since I am far far far away from my home (Germany) where I can see doctors and where my husband now is. I am in MN with colleagues. I fly back on the 27th and I am doing what I can to baby step my way to that time.I heard the Mayo Clinic is big here in MN....I might just walk in there and tell them to take me and fix me, and I'll pay off the bill.
 
If you truly feel that your voice is being affected, you should consider visiting Mayo, but not because I think you have MND, but because you could have an autoimmune issue, thyroid issue, or still be having problems from your injections. I'm sure you wish you were at home in Germany...do you have a decent support group of family / friends in MN? If yes, perhaps it's time to have someone advocate for you and make some calls to gather copies of all tests done (EMG, MRI, X-rays, etc) and coordinate a short hospital stay where you can get everything done under one roof. I (like you) am so tired of running from doctor to doctor to MRI center to lab for bloodwork. It is mentally and physically exhausting (especially when trying to work, care for home). Any way that you can fax or scan and email your results to a trusted doctor in Germany? That may be a good idea too. Just remember: you may have something weird going on (like most of us), but your EMG's were clear. That is the gold standard. I pray that you will get to the bottom of this soon and be able to live a happy and productive life. God Bless
 
Thank you, to all who have reviewed and provided your advice! I think now it could be the fat loss. But why the weakened grip?I am just caught in a ball of fear, trying to move forward in the day while staying at my friend's/colleague's house. My mother arrives on Saturday to stay with me in MN for next week so I feel good about that. I will see what we can or should do as far as clinics,etc.My voice is crackling, goes in and out. It feels like my vocal cords are crackling, like as if pop rocks are in there. Not my throat....my throat is not painful and no swallowing or slurring, but the vocal cords are crackling. Not when I'm breathing either, nothing to do with breathing.I yelled the word STOP for a couple of seconds and my voice changed pitch several times. This, plus my weakened grip and I still have twitching, I'm a wreck. But having to be a wreck inside, and not show it, since I am a guest.Keep repeating "this too shall pass"....
 

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