ALS Weakness/Atrophy Questions

[tearsneverfall]

Does anyone know how the weakness/atrophy thing transposes in ALS. I feel like my hand is weak today and it hurts on the sides (both sides). It looks smaller than my left hand. I can still do the same stuff it just feels really odd today. I just still feel as if I'm a slow progressor and that it's slowly getting weaker. In atrophy related to ALS does it just shrink up or get marks and pot holes, etc... in it. Not having a very good "I don't have ALS day" as you can see. I start my new anti dep. tomorrow. I just hope I can tolerate this one. So sick of this especially because of what it's doing to my husband and daughter. I'm just not myself with them and haven't been for a while. I'm so afraid I'm going to be worried about this until I get past the 13 months mentioned in the 6.7 study. That will ruin so much including the holidays and my favorite day of the year which is Halloween and just so happens to be my daughter's 3rd birthday.

 

[owingDuckWhistler777]

Hey dont - don't!

Many of us have had the "omigod my hand feels kinda weird and I'm sure it's weak" feeling - I know I have. It comes and goes and gets better the less you think about it.

If you had weakness you would not be able to do things like hold a pen or button your clothes. Weakness means loss of function. ALS gives profound weakness which worsens day by day. What you have is "perceived weakness" which is common in BFS - try doing a search on it.

And don't even try to look for atrophy in your hands - if you had it, loss of function would be very evident by then.

If you have had a normal emg then the 6.7% study does not apply to you - you are already in the clear. Time to start living your life again.

David