3 Year Update: Life After Benign Twitching

[BarbiePetals]

I have not posted in awhile but I wanted to stop by to give a quick 3 year update. When all this first began it totally destroyed my life. I saw all the doctors, had all the tests, and still didn't believe it was benign. Now 3 years later, I am doing so much better. I still twitch from head to toe everyday but I don't let it bother me much anymore. I have days where it's not bad and days when it is but it does not scare me anymore. It's not ALS or any other scary disease. It's just benign twitching. I will never know what caused it and I will most likely have it forever but it doesn't rule my life anymore. For the new people, please believe your doctors and don't let the anxiety control you. This stuff can mess with your mind if you let it. This board saved me so I hope I can help just one person out there. Time will help you and eventually you will not longer be afraid.~Leslie

 

[BobJazzy]

I love posts like these. Thank you Leslie for checking in!!!! -Matt

 

[ShannyB63]

thank u leslie, its always so good to hear from a veteran twitcher...i always hope that one day i will just wake up and not be twitching..but ive been twitching for so long now...almost a year that i think if i woke up twitch free i would run to the drs in a panic... ...thank u for posting and letting us know how u are 3 years into this...best wishes shannon

 

[GHayes420]

Thank you so very much for sharing and giving us all hope! I really love posts like these. They make my night/day.

 

[Gloria123]

I agree with everyone - these types of posts are so valuable. I'm about 8 months in, and I still need the reassurance that these types of posts give me. I really appreciate your input, Leslie.Mitra

 

[BarbiePetals]

Glad I could help. I promise it does get easier.

 

[GlitterFountain]

Leslie,You sound 100% mentally healed to me. Congratulations.I remember when you were a newbie and I looked at your posts constantly for reassurance. Doesn't seem that long ago--but sounds funny to see people calling you a veteran.Terri

 

[BarbiePetals]

It's great to hear from you Terri. How are you doing? I can't believe I have been dealing witht this for 3 years now. It almost doesn't seem real. Even though I am over the anxiety I do admit that this stuff is really annoying. You really just have to try to tune it out.

 

[GlitterFountain]

I'm doing well. Thanks for asking. Tapering slowly off the Klonopin actually improved my symptoms. Still on the Keppra, the neuro will make a decision about decreasing that in the future. And the rest...I just tune it out like you said. Feel free to PM me anytime. Keep on keeping on...