Ok ..I just wrote out about my whole experience and symptoms and visit and it didnt post. So here it goes again. As most of you know I've been twitching OFF and ON for 18 months. (4 months this past set). The past few days I "thought" I was noticing ATROPHY in my ankle, my calve etc. ! Sooo literally last night, the night before last I cried, threw up my food, and trembled from being soooooo scared (which is NOT good when your pregnant). This morning I got up and began to pray. I said "God, I cant take this another day, w/ this worry and anxiety and fear..its eating me alive"...So I got on the computer and called EVERY NEURO in MY CITY and SURROUNDING CITY. I found the top specialist in my city..! I called..I was on the phone w/ the nurse and my voice was just trembling.. I started crying- they had NO appts available today- but she said "let me talk to Dr.Counce and see if I can get you in anyhow. I thought Ok God, If this is your will, it will open up for me. Sure enough at 11:45 my phone rang and the nurse said "The Doctor is going to see you during her lunch". Can you be here at 1:15pm. I'll be honest.. I didnt shower, I didnt put make up.. I didnt do anything. I hit the door . I got there and I was shaking like a leaf..I saw all these people around me.. A LOT of MS..and Dementia...and other mnd's , dont know If I saw ALS but I did see some disabled patients. I just kept praying. Anyhow they finally called me back- I saw a nurse- she took down all my info, history etc. Then I saw the Nurse Practictioner..she did my strength, reflex, babinski, eye movement thingys..etc..ohh and this pin like needle thing all over my legs and feet...
ouch. Soooo..ohh by the way..(my reflex were slightly brisk, which she said "no concern" esp since I was uptight and shaking like a LEAF. Sooooo she left the room and dun dun dun dun.....Here comes the most beautiful astounding neuro I've ever seen! She went over all the strength test with me again- etc..checked my reflex's and said "normal range". Then she got a rubber thing and started hammering away gently at my muscles and said "maybe we can aggrivate them enough so they appear for me"..
Because since I had been in her office I hadn't had a ONE . Nope she couldnt get them to do a thing. (go figure)
Anyhow- she then said "Have you heard of Benign Fasciculation Syndrome"
I said "why YES!". She said. Well..I cant see your fasciculations , BUT what you describe sounds like it...soooo this is your Dx. I said "Well what would it typically mean if you cant see the fascics she said , Nothing!" but she said I believe you have them you just dont have them bad. You'd thought I'd one the lotto. I jumped up and hugged her. She said..there is ONE MORE TEST we can do if you want to for YOUR REASSURANCE but I am 100% confident on BFS. She said ever heard of a EMG I Said Yes. She said..if you'd like it for peace of mind we can do one. I said "If YOUR CONFIDENT in your DX" then I am...She said "I'd only do it for you- I know your fine". Soo I said "I'll pass". Once again as its been said here 1 MILLION TIMES its about WEAKNESS. REALLLLLL WEAKNESSS!!! She was not concerned where or HOW i twitched...my strength was marked "excellent". She said We typically do EMGS for patient reassurance, to look for nerve blockage, or to further a dx. , but in your case, you really are ok w/out it.Sooooo I jumped off the exam table..hugged and thanked her for her time...and went on my way- She said NO FOLLOW UP unless you just need more reassurance! Today is a NEW LEASE ON LIFE! I finally DID IT!!! I will agree if you HAVENT SEEN A NEURO to see one..To PUT YOUR MIND AT ease...and NOT GO THROUGH THE LIVING HELL THAT I HAVE. Please!!!!Ohh I dont know if I mentioned the possible atrophy and dent...in which she chuckled and responded..."thats nothing NEAR IT"...she said my feet were bulky and good tone and so where my hands.Anyhow THANK YOU EVERYONEEEEEEEEEEEE ON THIS SITE!!!!! , but I have to GO NOW!!!! I've got 10 weeks til this baby comes and I am going to start living again!!!Lovely 




