GrizzlyLeader
Well-known member
I started my twitching journey 16 months ago. I scheduled a follow-up this week due to my twitching increasing in numbers and amplitude. Dr did another EMG not to check for ALS, but to see if my neuropathy had progressed any. Turned out it showed it had progressed slightly, but she said it was a small amount that could be explained by simply using a different piece of equipment. Just like scales may show a different weight. This was going to be my last visit with her so we just sat and discussed any of my concerns with bloodwork, twitching, ect. Could a type of cancer be causing this, is the diabetes actually affecting me this bad, even after I got it to a point where I didnt need to take medication. Keep in mind, I am one of the people that twitch in the 10,000's a day. I cramp, my fingers and toes wag around, I get electrical zaps, buzzing, muscle pains ect... Its not like I'm in any kind of constant misery at all. It gets old, but I at least get use to it. Dr, told me that they have ran every test to determine what was wrong. She told me I was strong as a bull (which just confirms the twitching without weakness fact) and that I basically should expect to live with it. Key word is I will "live". I'm not concerned and have not been concerned about als for some time. She told me that stress and anxiety is probably making it worse. I am extremely stressed and I have been for a couple of months prior to all of this crap starting. It doesnt matter if you think you are or arent stressed or anxious, Youre body knows. I am not one of the people who think anxiety or stress are making my symptoms continue. I do think they can affect the severity of them. Stress can give you headaches, heart attacks, indegestion, irratable bowels ect. I guess it can affect anything in your body. I work out of my home on a computer. When I sit around dormant for a few days working on a project, my symptoms seem to get worse. I feel best after I mow the grass, work in the garden. Anything that is physical instead sitting still. It also helps me mentally since I am proving to myself that I can still do the same things physically. At this point I dont really know much more than I did 16 months ago as to why I have all the symptoms. More importantly though, I know why I dont. You will never be the same as you were before getting bfs. You will get to the point where you dont remeber life without twitching. The abnormal becomes the normal. This will allow you to get some peace of mind. Thats really what we all need to strive for.