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congrats on your son! this is the best of life and the greatest joy. we have two children. forget about pd. the twitching does not go with it really. the movement of limbs and digits can be myoclonic jerks which are not part of als or pd to my knowledge. moreover, my uncle herm has had pd...

Hi guys. I like to stop by every now and again just to say hello as this forum and the kind people here helped me to get through a very tough period.So...Assuming I live until March, I will have had bfs for 8 years. As I type these words I can feel twitching in my calves which have been in a...

Shannon I have twitches literally everywhere - including my tongue and inner ear which I assume is what you are referencing. It's not normal at all but it's just some complex process that is annoying, scary, misunderstood but yet benign. Have you ever seen someone with a tick - like...

I have very bad health anxiety too. I'm suggesting that confronting your fear (anxiety) is another way to deal with it. And I respect that that might not work for others. For me it's a relief to understand that I have 1 in x number of symptoms that ALS patients have. So I therefore do have a...

Hi there. Jerky ankles is simply referring to the Achilles tendon reflex test. This is when ur dr tapped that tendon while holding your foot up. It's just a reflex and many things impact them. 2+ is fine. You shouldn't be nervous about this in isolation.If you went to the doctor with foot...

Simone,I've had bfs for 7 years. I used to be like you in that I would visit ALS sites and draw conclusions from what I learned there...for sure I had ALS.I coughed today. Therefore I have lung cancer because everyone who has lung cancer coughs. That's your logic. Can you see it's absurd...

I'd recommend you stop doing that :) Many of us can provoke fasciculations by stretching, tapping, moving suddenly, etc. Im pretty sure you're the first person on the forum who attempted the feat on their tongue - you should get a special badge for that. Seriously, I would not be concerned...

If you are worrying after reading these reports and posts...STOP IT!You have to look at facts. Als is very rare but it does have a 'normal' course which is that a person dies within 2-5 years of being diagnosed. That diagnosis NORMALLY takes months, not years. Therefore, by the time years...

Hi Dave.I can tell you that I share(d) many of the same symptoms that you have including the tinnitus which for me developed about 2 years ago. I am actually not certain it is related to the bfs but I do also get twitches in my inner ears...yes there is a tiny muscle in there which can twitch...

Time passing. I definitely empathize with the fear that is generated by looking at your foot or hand and seeing numerous twitches going off. One wonders how it could possibly be benign. In time you realize that nothing more dire is unfolding and you come to accept the reality of bfs.Now that...

I've had them all over my tongue for many years.

The tongue twitches sort of feel almost like little electrical bursts for me. They take me by surprise. When my symptoms began my tongue was twitching so much that it literally felt like I had pop rock candy in my mouth - I was sure I was a goner.

Hi Jeff. I was just looking and you've been a member of the forum for 2 plus years. I don't see any possibility that your condition isn't benign. You would be in incredibly bad shape after 2 years with als and certainly not a specimen of health. Sure the disease could spread but SOMETHING...

Vibrations are sensory.Pls seeYou lose :)I also had sensory issues at the onset of this. I remember my feet feeling wet and once feeling a vibration so strong that I literally thought a bone was moving back and forth in my leg.No worries for you.

Jerry - STOP IT!You cannot wait until next Christmas to live. Your symptoms are similar to mine and I'm still around after all these years. I know how terrifying this is but you are going to be ok. Your stomach is twitching - that's like a good sign :)

Dont worry - you joined 2 years ago...it's just benign twitching. The tongue twitching is scary though and perhaps more bothersome are the annoying inner ear twitches. Madness!U r ok.

Vibrations are sensory and therefore not affected by ALS. That's true.

Yes but I was normally nipping it while awake...was very scary but it has not happened for a long time....

Jerry,Any muscle under your control can possibly twitch. I also had abdominal twitches - long lasting thumpers some even for weeks at a time. Specifically when this started I remember pulling up my shirt to show my mother mynstomach thumping away.Now that I say under your control maybe even...

Mine are exactly the same and have been doing that for 6+ years...it looks like aliens are trying to get out of my calves!