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So true. My best friend's response when I confided in her about all the craziness was "Wait..you mean like the twitch I get in my butt all the time?" I think we are just a little more in tune with our bodies and because of that any deviation away from homeostasis leads us down a dark path...

I'm stalking the boards today because my thumb twitch is driving me insane and after having it for almost 2 weeks now I am starting to worry. Reading this makes me feel better. Mine is really fine sometimes, barely noticeable. Then other times the whole thumb moves in a rhythmic fashion. Then I...

Thanks everyone :) As usual I am on from one worry to the next. The stomach thing has gotten better. Not really sure what it was about but it took a while to subside. I still have the weird, tickle lung feeling and my thumb is driving me MAD!!! That's what I am currently obsessed with. It...

This is so funny bc I just posted a rather long post about almost the same thing. I am getting these same symptoms! Now I don't feel so alone. It's so frustrating and annoying. The post above about the bulbar onset was quite comforting though! Thanks!!

I tried to post back before thanksgiving but the board was having some issues and I kept getting kicked out. In a nutshell on Nov 21st I saw the neurologist whom I was originally scheduled with (if you see my past posts it took a month to get to that appt so I saw a horrendous nuero prior. I...

What sorts of meditation do you folks practice? I am interested but don't know the first thing about any of it. How does one start?

The test started with the tech doing the nerve conduction. It hurt but wasn't awful until she did the peroneal nerve. That one hurt like a mother. She looked at me and said is that where you are feeling the issue and I said yes and she said...yeah..low amplitude. Well that did it. I started...

I got some labs back from my neuro appt. He never called and I found out by checking the patient portal for my drs. Turns out my aldolase is elevated and I'm freaking out!!! To add to my growing symptoms I now have muscle pain in my calves and ankles. And my left arm shakes whenever I try to...

I literally have every. single. symptom as you. Reading your post was like reading my own experience. The odd feeling in the arm, the weird feeling in the left leg on the lateral calf, the feeling of "about to cramp" but not going into a cramp. I have my first EMG on Tuesday and I am going nuts...

I just thought I would add that I think I may be keeping my appt for next Thursday with the random neurologist I chose from my old medical group. I had seen one of them for headaches...I called to make an appt when this started because I knew they took my insurance. I had no clue who I was...

Well I had my appt last friday and subsequently spent the whole weekend dealing with a sick daughter and working so I haven't been able to catch up. But as the title indicates...the neuro appt was useless. He spent a great deal of time with me in his office, then examining me and then back in...

I'm right there with you both grapepie and sadface. At least we are in it together! Here's to hoping we are all just sad sacks of crazy :)

Forgive the spelling errors...on my phone and it's hard to proofread on this tiny screen!!!!

I called my GP and asked if she had any thoughts on a different dr to try since the one she recommended is out of network for me and the one I called was a month away for an appt. she gave me a dr who is able to see me tomorrow. I think he's new to the hospital (this month) so he has no patient...

^^^I do all of these except the tongue twisters and cheeks. Maybe I should step up my game lol? If nothing else we will be the fittest bunch around! Now all of you stop making me laugh so I can go back to being miserable and morbid.

BFSB and LRT...thank you. To Lrt (I hope that's the right screen name lol) it was me offering words of encouragment. Because I completely empathized with where you were (and are) mentally. I was telling you what I know I should be telling myself but it's so hard to believe the words. I know I...

What made the whole thing worse was the thought of what would happen to my daughter who just turned three. I had the funeral planned, too. Would she remember me? How would she react when I was finally bed-ridden, unable to breathe for myself, and unable to pick her up? I became positively...

I needed this today. I am going to cling to this like a raft in stormy waters. Thank you so so so so so much.

I'm calling my GP in a few for a referal to a psychologist bc I am in a very bad place. I cannot stop crying. I still have a month to go until my nuero appt and I am not coping well at all. My symptoms are worsening. The twitching started in my left leg and I had a few other places but it...

^^^^^laughing so hard at one leg hopping bc I am doing this all the time. And one leg step ups. And lunges. I'mSelf testing like a beast. Hell I'm afraid to get out if bed every morning bc I'm afraid my foot won't work. And I'm 2 weeks in. We are a sad lot lol. But at least we arent alone :)