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I saw the lab test titers myself on the EBV and 3 doctors agree it shows a still active infection. They consider it chronic EBV at this point, which antivirals have shown to help in some cases. See Dr. Montoya's work from Stanford. The klonopin and gabapentin have helped with the symptoms...

As a few of you know, I've been lurking here for 6+months and just recently started posting. I am not personally the BFS sufferer, but my husband starting having these symptoms (technically more BFCS since he experiences a lot of cramping in addition to twitching) this past November after...

My husband's twitching actually dramatically increased with acupuncture so he stopped.

My husband's muscle cramping improved with magnesium. Not so much the twitching.

I am not the BFS sufferer, my husband is, but I'll answer for him...1. Florida2. No. His weight had been steady for about 10 years. After coming down with BFS (brought on by mono) he lost about 25 lbs....

Thanks again to all of you; I appreciate the insight into the other side of things... AZ and Chrissi you guys are right on. It has definitely been tough on his ego as a man to not have the energy and stamina he used to have and to be the most mentally fragile he has ever been. Mario I...

Thanks to all of you for your support and affirmation. I guess I've been on the right track, just staying positive and facilitating the improvements to our diet, etc. I respect all of you because I know what havoc this condition has wreaked on your lives since it has definitely been...

Thanks for your reply. I am certainly doing everything I can *think* to do, but not being the one with the condition, I have a different perspective obviously.The problem isn't that he thinks/fears he has "the disorder that shall not be named on here" or anything like that. He knows he doesn't...

So thd backstory is that my 42 year old husband came down with what the neurologist deemed BFS during a bout of flu like symptoms last November. We have been struggling since then to deal and try to "fix" it with diet, supplements, etc. Another doctor tested him for Epstein Barr and CMV and...

I think it depends on the person. If your symptoms came on after a period of stress, or you have a history of anxiety, then absolutely anxiety centre could help. However, some people's symptoms coincide with viral infections, etc. and I'm not sure that approaching those people from a...