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  1. K

    Muscle Flare Up Cycle & Twitching Worries

    Well good news is my arm stopped about a week ago, bad news is my back is twitching and it is a real thumper! I had to break my no drugs rule last night and take ambien to get to sleep because of it. I hope this one is short lived because I can find a way to stop it to get to sleep and I don't...
  2. K

    Muscle Flare Up Cycle & Twitching Worries

    I have gotten used to the flair up cycle that comes with my bfs. Happens about every 4-6 weeks where I get a muscle that bothers me for a week or 2 then stops. Things go back to normal for a bit then it returns. For about a year now I haven't had body like twitching but this past week after my...
  3. K

    My 4-Year BFS and MDDS Struggle

    I had about a week off from the twitching while the dizziness came back and sure enough as soon as the dizziness goes away BOOM huge leg twitching again. Its not a little twitch either its almost a full muscle doing it. One of the biggest ones ever had I would say.I have been dealing with this...
  4. K

    Twitching: Leg and Stomach Woes

    My leg was twitching for the past 3 days, that final stopped and now my stomach is going ape *beep* and twitching like cazy! Things seemed to be getting better for a while now it's all falling apart.
  5. K

    My Gluten-Free Journey with BFS

    Here is a little history on my time with bfs. April 15th 2013 twitching started at 10pm eastern time. Had little sleep and was stressed out from travel on plane. Symptoms continued for about 3 monthsDr's said we don't know and shrugged their shoulders. Threw gobs of pills at me and told me...
  6. K

    My 4-Year BFS and MDDS Struggle

    I have had bfs for 4 years now. It doesn't bother me as much as it did once before but I still hate every second of twitching. I also have had MDDS wich means dizziness and false sense of motion. It is also a very rare condition. I recently had a relapse in MDDS symptoms after a fight to Seattle...
  7. K

    BFS: Progressive Condition or Not?

    I have been dealing with bfs for about 17 months now and it has gotten a little better. But I recently read a survey by someone online and he said it is a progressive condition and will continue getting worse unless it was caused by stress. That made me freak out and I'm worried that I will get...
  8. K

    Unwelcome Twitches Everywhere: Not ALS

    I realize this is a dead post but I can't help but relate to this. I do well for a few weeks and then I have weeks of bad twitches. I too had vertigo before this. it that started after I wen on a cruise and the dizziness lasted for months. But all my symptoms started about 1 year after I began...
  9. K

    Dealing With Increased Twitching and Hotspots

    I had a good solid 6 days with almost no twitching. Then I had a sleepless night and took a larger dose of ambien and next day my twitching was back again, it's stuck around for a few days so far but I know it will go away. I have been really trying to stay positive, it's super hard to. The...
  10. K

    Dealing With Increased Twitching and Hotspots

    It is so hard for me to accept,, I really want to be able to though, I am a cronic worrier and always have been so it's not something I can early change. I had a really good day today at least and had zero twitching until about 10 pm when a few jiggles here and there happened in y back and leg...
  11. K

    Dealing With Increased Twitching and Hotspots

    Lately my twitching has gotten more frequent than it was, I dot know what has changed I am still on my paleo diet and have not changed any supplements. But I feel like I've been getting more hotspots for about 3 weeks. It sucks because they were almost gone for 2 months in a row. I'm about ready...
  12. K

    BFS Flair Ups After Benzo WD?

    I eventually fell asleep last night after I took some meds and put a compress on it the twitching subsided. I normally take 400mg valerian,5mg meletonin,5htp,gaba chamomile. All at once to fall asleep. I have very bad primary insomnia even without any twitching happening. So add the twitching in...
  13. K

    BFS Flair Ups After Benzo WD?

    I have been having flair ups of bfs recently after about 2 months of very few symptoms. I found this site where a person describes what I feel is similar to what I'm having, talks about benzo withdrawl damage to the brain and how it can affect bfs. He has had it for years and evidence points to...
  14. K

    Right Hand Twitching for 9 Months

    I wanna try it because I don't do very well when left to my own devices, I just hope I can afford it. Treating this has been very expensive when u add up the organic food bill with the acupuncturists and herbals it has been a few thousand dollars so far. I really hope this works I have no idea...
  15. K

    Twitching is back again how do any of you sleep when it happ

    I had a 2 month period of time where the twitching was pretty much gone from Oct toDec. but unfortuntitly its back, mostly my left eyebrow. I dont know whow people can just move past it and not pay attention in order to Fall a sleep. how can anyone relax like this? I often wonder if this is...
  16. K

    Successfully Changing Diet & Ambien Effects

    The twitching has lessened allot since this morning it stopped for about 4 hours. Right now I'm trying not to aggravate it by keeping it still. I'll look into the allergy testing but I just hope that one day I can have normal food again without worry, aside from not being able to eat treats it...
  17. K

    Successfully Changing Diet & Ambien Effects

    I have had allot of success changing my diet, I have not had any thumpers for over 2 months, last night I couldn't fall asleep so I took some ambien about8 mg and I woke up today and my left arm by my elbow is twitching like crazy. The only thing I did different is take ambien at higher dose...
  18. K

    Concerned about BFS from Medications

    It kinda scares me it says it can effect speach and breathing. I have had bfs for 7 months and I always worry about it becoming more severe. Is that silly should I be worring about it getting worse? I hate this it is making my life really hard.
  19. K

    Concerned about BFS from Medications

    I found this article describing Perifrial nerve hyper excitability, it sounds just like bfs to me. Just thought I would share it.I am concerned that I got bfs as a result from medications I take and possible nerve damage from years of use.
  20. K

    Healing and Recovery Through Diet

    I agree with the previous post. I have been on the diet for 3 months. I still get twitches but far less frequently and last only a few minutes at worst compared to days or weeks. I even have times where I will have no noticeable twitching at all for 6 to 10 hours a day. I sleep much better and...
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