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If you decide to ween down it is helpful to not put too pressure on yourself to get off the meds. When I was taking klonopin I weened really slow (even though I was at a small dose to begin with .5mg/day). I started by taking .25mg every other day and eventually jumped down to .25mg/day after...

I am on the other form Nicotinic Acid that my doctor prescribed for high cholesterol. I have been on it for two months and my twitching has been pretty good for the most part. The only problem with the form I am taking is you get the Niacin flush which is super annoying.

BFS,If i can make a suggestion I would get a primary care physician and only go to a specialist if the primary care recommends it. That is something I did because I was going to a host of different doctors: neurologist, even a neurosurgeon, a psychologist who specializes in pain management...

Sorry for the long post here but I also think you should not rule out anxiety. This is a list of all of the symptoms (from the Anxiety Centre) that can be caused by anxiety. It is quite extensive and maybe if you get good results from your MRI you will consider that his might be your...

I think we should sticky LisaLM's post because it is something all the newbie's should see. I do not think there are any sticky's for MS and unless you are an expert it is difficult to get across to people just how different the disorders are. Also after ALS, MS (combined with Parkinson's) is...

I don't know about the saliva but I have had TMJ for a while. When I open my mouth wide I here a pop and I can see a small hitch where my jaw jerks to the left a bit. I also get some pain there from time to time (it was bad for a couple days earlier this week, but it is most often when I am...

Yes it has happened to a lot of people here. There is a strong tie in to both anxiety and twitching.

Ash, I just have this big feeling that things are going to be looking up for you!Mike

There are a good number of veteran "twitchers" that have taken klonopin over a prolonged period of time to help with their BFS without problems. The dosage of many of the people on this site that I have seen take the medicine for BFS is usally low (.5mg/day) and it still provides therauputic...

I can only speak from my own experience. I do not crave this medicine and I do not feel a need to take it. I even forget to take it sometimes. Therefore, I do not feel that it is like cocaine or another "addictive" substance. I did not say that there are no issues with withdrawing from...

Yes the taper should be long but I don't know about 25% of the time you were on it (except if you are on high doses). When I tapered down from .5 to .25 mgs per day it only took 2 weeks. I almost stopped taking it (was taking .25 every third day) but got a really bad cold which drove my...

Klonopin is better long term than xanax (it can still be problematic) because it has a much longer half life. With xanax you start getting breakthrough symptoms unless take multiple times a day. It is also not addicting and I have heard xanax is.

Oh what I forgot to tell you Ash is that after all the stomach/ esoph tests I have ever done the only diagnosis that I have ever gotten is that I just have a very sensitive digestive system (aka hyper-excitable nerves). I think you might be in that same boat too.

As I read about the pain and problems you are having now it reminds me so much of what Chrissi went through with BFS. I know how hard this must be for you and how scared you must be but you are not alone in this. Alot of people on this site have been through similarly difficult situations and...

One thing that might help in terms of sleeping is to get a body pillow and sleep on your side with the pillow between your legs. I have seen some people on this forum post how they used that to help with the muscle jumping/ twitching that causes them to lose sleep.

Ash,Sorry to hear you are not doing well. I hope things get better soon.Mike

Well as I said I have nothing but respect for what you do on this forum. You have definitely helped alot of people.

So I am starting to think that whenever someone asks if some twitch is new or unique, there should be an automatic link to a Matt post talking about how he gets that twitch too. Every twitch, weird zap and jerk people ask questions about it seems that Matt has dealt with and often 24 hours/day...

When you have BFS everything is weird but common among other BFS sufferers.

It could be claritin or it could be that you were focused on something other than your BFS. Ask any vet around here (Mario comes to mind) and they will tell you a similar story. I remember being at Halloween Horror Nights at Universal Studios last year. I had been having a lot of cramping in...