Search results

hi there, listen to your neuro...he know much more than u do...i know us bfs people think we know everything....i had a EMG only because i demanded one and i had to pay for it myself...and i doubted the results on the way home... :rolleyes:

hi there, listen to your neuro...he know much more than u do...i know us bfs people think we know everything....i had a EMG only because i demanded one and i had to pay for it myself...and i doubted the results on the way home... :rolleyes:

hi there, yes most definately i have had this kind of twitch in many parts of my body...one day for 3 hours straight i had a woodpecker twitch in my butt cheek...it was so freakin annoying..its no different to any other twitch though...just i think more annoying....

Check on both of these two as well..nothing to fear my friend it's all Bfs... :D)

Oops I'm a bit B5 too though cos I do get sensory as well

I have also had thumping in my ear...it is common with Bfs... :)

yes, i get this rumbling sensation in my feet and thighs constantly...i just think its a quick succession of twitches..i have also felt this in my shoulders and hands sometimes...

hey daniel, congratulations on your one year anniversary...i knew u would get here in one piece..u are a strong person and always have been...even though u were a bit of a wreck at the start...but hey we have all been there my friend..again congrats...hugs shanny :D)

hi there, i absolutely totally went thru this phase...i even posted a couple of times i believe...i felt like i had too much spit as apposed to not enough...im over it now of course..but i did have this so please dont worry..best wishes shanny

okay okay kids....no fighting...were all here to help each other thats what this site is all about...and leanne u are right about the timeline.. :) ..what i was trying to say was, but i think i said it wrong was that by 15 months there would be some serious issues...including atrophy, weakness...

yes i am often woken up by back, shoulder, hand, arm or leg twitches...

I beg to differ here, the average ALS diagnosis does not take 15 months..where do u live?

Good post Chad, this will be a good read for newbies and others struggling,.. :D)

matt u have been a great help to a lot of people including me back in the dark days...matt and i both started twitching around the same time..i think im about 2-3 weeks ahead of u..and like matt im one of the tongue, calves, feet actuall everywhere twitcher too..and i can tell u that i used to...

hi ash, im sorry your so stressed and upset at the moment honey....please believe me when i say that what u describe sounds like GERD or indigestion..very very common with anxiety, my hubby has gastritis and i tell u he gurgles all the time...and if your throat muscles werent working properly u...

hi tom,nothing u describe sounds like anything but bfs..im a 18 month twitcher now...i know full well what the fear is like at the start of all this..i still remember thinking ok this is it im finished, this is how im gonna die...but i didnt die and i still live with the twitching everyday...im...

I've had this for 18 months it's nothing..with bfs any muscle can and may twitch and buzz at sometime..I hope your neuro appt helps with your anxiety...

hi there, yes they would absolutely contact u if there was anything wrong with your mri..i hope your neuro appt goes well and please come back and share your news with the rest of us..please try not to worry....shanny

A new baby...very exciting...I love babies and children..probably why I had 6 ... :rolleyes:

Hey Chad, no I don't get angry anymore..this is my new normal...I twitch so I just don't dwell on the what ifs or why didn't I do that different anymore..I'm glad to be alive and I enjoy everyday I have..life is too short to have regrets... :D)