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DUDES~! I thought I was the only one who beat all of the horrible illnessess! We are some Bad A.... (well you know)Just today, I had a brain tumor... but it went away just after lunch. The brain tumor isn't so bad as the bone cancer - I had that for like four weeks before I beat it.... I'm...

Hey Doc~!My tongue twitched for a considerable amount of time. The twitches were about 2 -3 mm. They looked like small dents that would pop around on my relaxed tongue. It was really a very odd sensation.One day, they went away - and I haven't seen them for several months now.I pray you find...

Robynn is absolutley right, I couldn't have said it better! I hope you remember her words when the day gets long and you start doubting! I pray for peace!Rob.

Well spoken Darr - we can be so focused on dying we don't live - that was my probem for almost eight months.My EMG was "abnormal" as well - just because your EMG doesn't fall within the boundries of the "norm" doesn't mean that something sinister is going on. I understand what "different" feels...

Hey Wonderful People~!Thank you so much for all of your kind words, please never underestimate the power of the encouragement that you provide on a regular basis. Your encouragement pulled me out of some pretty terrifying places. The challenge for me - and anyone new to this is actually...

I'm so sorry that you're struggling so hard right now. I had continuous tongue twitching for almost two months. I'm not sure how you define your "tongue twitches" but mine were like small little dimples on my tongue.I would see them the most when my jaw was slack and my tongue was at rest...

Quick recap ~ Two Nero’s, Two dirty EMG / Two needle tests, Two docs that decided to listen.My Symptoms in order of progression (just for giggles) Weak Arms (perceived) Weak Legs (perceived) Cramping muscles (REAL) Fasciculation’s in my legs Loss of balance Started to stumble over words...

Thank you so much! The doc never did the actual biopsy - before he did it, he wanted to have the third neuro evaluate me. I think he wants the third evaluation to make sure that he was going to have the lab do all of the appropriate tests... It's been hugely frustrating!

This thing is really starting to roast my chestnuts! Everything seems to be getting worse - and it seems like there is no end in sight. I would love a reprieve - if only for a day, even an hour - but it doesn't come.This morning I went to pour coffee and I felt like I could barely hold onto...

Thanks for posting!I've got all of the same symptoms as you do - I think I would have written the same list.When you mention the "latest attack" - does that mean your symptoms come and go?What did the doctor prescribe the Trazadone for? My doc recently put me on it for insomnia - although I'm...

Thanks again for all of your responses!Today was weird... MOST of my major joints hurt - alot - My jaw, elbows, hips, knees, shoulders, fingers... each of them has hurt in the past few months, but they ALL hurt today... I'm not sure if its related or not... what are your thoughts?To answer your...

Thank you for the quick replies, they really mean a lot!Although I sound really whiney right now, I am thankful that this new guy seems to be taking charge of the situation, I really am. I don't believe that he agreed with his PA that the feeling in my arms could be an exclusive result of the...

Today I met with the muscle specialist who was SUPPOSED to do my muscle biopsy today. His PA came in and spent an hour with me doing all kinds of tests. His feeling was that my arm problems were probably carpel tunnel. This diagnosis, although welcome doesn’t explain the cramps in my legs...

Tripper – I’m sorry you went through a rough patch. I identify to all of the symptoms and frustrations, the muscle cramps are a real annoyance!Although I can’t speak technically, or with any degree of experience, I can tell you just how much I have appreciated YOUR insight and words of wisdom...

Thank you, ALL of you for your insights and the kindness of your responses! The other day, I really let this thing get the better of me, the more I thought about it, the worse it got. You need to know that you have definitely increased the quality of my life – what a gift that is. SO – thank...

Ya'll are rock stars - thank you so much for taking the time to reply, I can't tell you how much I really appreciate your time!I definitely needed the infusion of your logical responses. I tend to be very linear and logical with my thoughts and feelings - but somehow when my body starts doing...

I know ya'll are not doctors, but by reading your posts, I know how much research ya'll have done and how smart you are, and I really would like your input.You know my situation - but things have been getting a little weirder - even for me.THE GOOD...Sunday I worked out for two hours, an hour on...

Mary ~Thank you so much for your kind words - I read them just before I headed to bed last night - and it was a real gift.Today is indeed a better day, the sun is shining, and life really is good.... I just have to keep my perspective right. I'm not sure whats going to happen days / weeks /...

Thank you again for your kind words.Sometimes life is funny. Today I felt really good mentally - my body was pretty much the same, but I had my head right, and I felt good. It was nice.About ten my wife calls, and her Doc called her in, and told her she had Lupus... It's really thrown me, its...

Sam,I agree with Tripper. Im not a doctor and don't know anything about emg or its language. I do know that the problem with your nerves can be explained by surgery as the doctor said and that without clinical weakness after nearly 8months of symptoms then...well... you can breathe a lot...