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I've been on neurontin off and on for a few years, mainly when my Restless Leg Syndrome flares up. Right now, I am only taking 600 mg twice a day, especially before bed. I don't really have any side effects. However, neurontin is best taken 3 times a day, in order to maintain a constant level...

I would agree, in part, with some of what Basso says. However, not everyone with BFS has anxiety. I think that anxiety can be part of BFS. A neurologic problem can manifest itself in many ways. Although BFS appears to be limited to the peripheral nerves, there may be cases where bulbar/cranial...

Dave, Did he do the feet last time ? Did he say there was denervation in the feet (not that it is ANY cause for concern since the intrinsic foot muscles are denervated for a lot of people) ?

I disagree with your disagreement of my disagreement. :D) It is a user problem. It reminds me of a typical office problem -- You can set up a filing system, but if the people don't put the files in the proper place, you have stuff all over. People need to put things in the proper place. I am...

Instead of all us BFSers meeting in Las Vegas, why don't we find out where the next convention of neurologists is and stand outside with picket signs demanding that they pay attention to BFS? Just because BFS doesn't kill you doesn't mean they should ignore it. After all, lots of people have...

Marcin What are the other conditions that may cause the sharp waves if not $#@ ?

Slavin - I'm glad to hear that the LD specialist said that you don't have LD. Now the question is: "What do you have?" All your symptoms suggest BFS, CFS, peripheral nerve hyperexcitabilty. Now you have to find a treatment that will help you cope with your symptoms. One suggestion is to look on...

I disagree. I think the problem is too many people post things in the wrong forums, or duplicate posts on a few forums. The symptom management forum should be for questions regarding managing symptoms, not people looking to share their experiences or garner emotional support. The support forum...

Stevepaul - Yes, two flavors of thyroid disease but similar symptoms. An autoimmune origin might explain some of it. I have an interesting article about neuromuscular symptoms from hypothyroidism. It is by Monzani et al. (1999). You can download it here: in pdf format. Dave

The truth of the matter is that Lyme disease produces neurological symptoms. It is also true that many of the symptoms are also found in BFS/CFS, Isaac's syndrome, acquired neuromyotonia, etc. It is good for Eric to bring this information to the forum, and it is important for anyone who has been...

Dee Dee - The question is whether information is false or is it just taken out of context? Is a statement a general statement or a specific case? The human body is incredibly complex, and everyone's body operates differently. Why do some people survive cancer and others don't? Websites, books...

If Seby is a doctor (and a neurologist as well), then he should contact Dr. Testa (his email is ) at the Ist. Nazl. Neurol. Carlo Besta, Dept. Neurol., Via Celoria 11, Milan, IT-20133 Italy. He is the contact author for the article "Survival of 793 patients with amyotrophic lateral sclerosis...

The following is my opinion, and is not meant to offend anyone. It is just an observation and a comment. Several recent posts on this website have addressed the occurrence and prevalence of ALS in relation to other neurological diseases. Some people have jumped on others, accusing them of...

Perhaps you have low thyroid function (hypothyroidism). Dry, irritated eyes, droopy eyelids are symptoms of this. There are lots of other symptoms as well, including neurological. Hypothyroidism is easy to treat too.

Fatigue is a common symptom and although muscle fatigue may be a result of overactive muscles, the same autoimmune dysfunction or chemical imbalances causing peripheral nerve hyperexcitability will likely disturb the overall function of your body. Although there is wide variability in...

Tongue twitching is common and the involvement of cranial and bulbar nerves is documented in several papers about BFS/PNH. You can download and read the papers by or to get a better idea.

One must be certain that we're really talking about fasciculations. Do you feel a twitch with you mouth closed and your tongue at rest? If so, that is a fasciculation. Do you see your tongue quiver and shake when you open your mouth and stick your tongue out? That is not a fasciculation, but...

ydav3yat3s - I agree totally. My brother is doctor, and chief of the U.S. Air Force hospital in Charleston. He said that even when people get their thyroid levels in the proper range, they never feel the same as they did before the thyroid problems arose. Part of the problem, I believe, lies...

Based on collegeguy's age [18], perceived high stress level, admitted history of panic attacks, and use of medications for anxiety, my first inclination would be that he has an anxiety disorder. True, there may be physiological problems at work here, but given his age, it is highly unlikely...

Steve - Maybe they are checking to see if you are Kosher? :LOL: