Recent content by ucdguy9

Today after 3 years with an EMG and NCS to confirm it I was diagnosed with benign cramp fasciculation syndrome/peripheral nerve hyperexcitability! My EMG showed only one fasic though! My neuro said " you're about the furthest thing I've seen from ALS". And I'll be starting carbamazepine in a...

Oh I know! Yeah they were up because of lifting weights. He even said thats what causes it usually and not to be alarmed. and presto, not working out for a week and back to normal

Hi All,So after having some strange new hotspots for the past month and having a relapse, I saw a new neuro. I had my CK levels tested by my GP and they were at 887 and thats what got me the referral. I went to him, he tested my reflexes and strength and all seemed normal to him. He said to me...

Hi Everyone,I haven't posted in quite a while but I wanted to give you all an update.I came here in October or November of 2011 with pain in my shoulder that would radiate and my twitches started. It was like a 4th of July spectacular in my body that came along with stiffness and cramps and...

I should edit that but, read the above and basically you would have had these symptoms in advance (months) before twitching and rapid heartbeat has nothing to due with neurons.

Hi There,So, I want to just explain a few things.ALS is a disease of the motor neurons. You have many different kinds of neurons in your body but there are specific ones muscle control. As there are implications for voluntary and involuntary neuron degeneration in motor neuron disease.Hence the...

I'm starting to think that in some cases it's more severe than others.It's like a spectrum disorder if you look at everyones post's on here.If I think about this rationally, this is a form of peripheral nerve hyperexcitability which is an encompassing term for: BFS, BFCS, Neuromyotonia (Issacs...

Hey everyone,it's been a while since I've been on here but I've had a couple of bad days. My tongue has been twitching every day for the past couple of months and it freaks me out so much. It's scalloped too from biting it. I went to see a doctor about 2-3 months ago and she noticed them and...

Hey,You aren't alone. I went into my doctor today because my tongue has been fasciculating so bad and she was like "yep there it is!" Her concern? None. You do not have ALS, you will be fine.

Thank you Matt! this is a great resource for everyone to take a look and reassure themselves. Please stay around for a long long time :D)

Very true, its just that hand just to twitch so bad and I noticed the dent get bigger. on the other hand it doesn't have the same dent. Sorry I was having a bad and symptom filled day yesterday. This board helps so much

So, i've been very paranoid over my right hand and the dent ( you can see it below the the pinky on the hypothenar and abductor). What dent you ask? ( I took the link down, ask if you want it)It feels hard to flex and using that finger isnt easy. I keep thinking its getting worse but doctors...

I was on Mirtazipine for a while but, it just made me really hungry and night and I slept way too much. My psychiatrist has decided that an appropriate treatment could be Lamictal. I'm on 25 mg a day for two weeks and then increasing to 50 after that. It turns out that I have a Vitamin D...

It really sucks. I just had an MRI yesterday and believe me I'm stressed out besides that. School/ Lab/Work its like 8-11 hour days of non stop *beep*.

Hey Chez,I think you should realize that your symptoms are occuring without weakness! If you had weakness first then I'd say be a bit concerned but if you're still around and moving just fine do NOT worry yourself! Try talking to a therapist or a psychiatrist to get on something to lower your...