UPDATE!Hi all - wow, it's been nearly 7 years since my original post. Am updating because I've had no symptoms at all (maybe a tiny few, but I ignore them) in that time, and I'm well. I know it would have really reassured me to see a post like this when I first joined, so that's why I'm...
Hi guys,You can see that in 2009 I was a bit of a mess, and genuinely terrified.Well, it's nearly 2013 and I'm fine!Hope that gives some people some peace of mind. It would have helped me a lot to read a post like this back then.Love D x
Hi all,Many thanks for your kind words. Maybe my experience can help some of you.I had months of terrible twitching, and I was so worried I made myself ill. Lurking on this board didn't help.I finally got up the courage to post, and lots of people were kind enough to write to me privately and...
Yes!My twiches are worse between 5-8pm and when I go to bed. ALso MUCH worse when I'm at work/stressed/anxious and better (but not gone) during holidays and days off.If I wake up, sleepy, in the middle of the night, and stay still, I have no twitches at all. Then if I start to think/worry or...
Thanks Suzi and Simon, very comforting to know other healthcare folks have it and it's not just me!Despite my medical training, I'd never heard of BFS before, and am ashamed that I 'googled' my symptoms, and ended up at MS. I know twitching can occur in MS. I know it's unlikely to be a first...
My turn to help you maybe, Becky!This sounds like 'globus'. It does not sound at all typical of bulbar symptoms.I daresay you are constantly swallowing as you are subconsciously worrying about it. I know, I do things like that all the time.Hope this helpsD
Hi Becky,Thanks for your kind words. Unfortunately I've not got the courage to see a doctor/anyone else regarding the anxiety thing yet, maybe that's something to work on. I've been trying to self manage it. It's not working clearly!I've been looking at other people's posts, but of course, I...
Hi guys,Looking for some advice/support/reassurance and really just to write this down to get it all out.I've been lurking on this site for a few months and have only recently got up the courage to post.I'm 28, female, a health professional. You'd think that would help, but if anything I think...