Recent content by simonw00

Thanks all for your feedback about this. As regards the metallic taste thing, I am guessing that it in my case it is unrelated to my BFS because it didn't come on until I'd had BFS for well over a year. But it is interesting to hear that a few others have experienced this symptom too so maybe...

Hi allI haven't looked at this site for a while - nice to see some familiar names still hanging around!I am over 2 years into BFS now and have pretty much mastered the art of ignoring the symptoms, which remain moderate to severe but, once the health anxiety had subsided, it was a lot easier to...

Hi PlayfulPantsGlad to hear your heart scare was a false alarm and I am sure your scan will also be fine - I guess the ENT surgeon is just dotting the I's and crossing the T's. Also good to know that, in terms of your twitching, it is a case of 'same old same old' and that you haven't 'fallen...

G'day Aussie SuffererNow, had you been "Kiwi Sufferer" I would have had a lot more sympathy for you!!!! No but seriously, you are describing symptoms that are completely identical to many other BFS sufferers and have, like many on this site, identifed a link with stress/ anxiety (being...

Hi allJust to let you know that I have had BFS for 3 years and I'm still fine. Hoping that those of you who are still going through the anxiety/ fear/ panic phase of their BFS might read this and take some comfort from knowing that this is the case. I had a pretty good dose of anxiety initially...

Good to hear from you Leslie - keep up the good work!RegardsSimon

Hi RobynnThanks for the prompt response. The leg just feels like its numb - being a doctor myself I checked my own sensation properly and it isn't that abnormal, it's more just the weird and unpleasant sensation that has been there day in day out for a good month now. It's interesting to hear...

Hi allI hope this post finds you all in fine fettle. I haven't looked at the site for a while - have been busy with other matters. But I would value some feedback from other BFSers about sensory symptoms. When I developed BFS 2+ years ago I had mild fleeting sensory symptoms in my legs like...

Thanks all for your kind words of support. For those who are interested, here is an update;It's been a busy 9 days but with much help from friends and colleagues we have managed to find a rental home and move most of our belongings into it. (It's bizarre that, even though part of the house...

A 7.1 magnitude eathquake hit my home town in NZ at 4.35 on Saturday morning. Our house has been destroyed but we are miraculously unharmed (physically at least) despite bricks, broken glass and our personal belongings flying through the air as we fled for cover in the dark. So twitching is the...

Hi Nervous MommyYou really shouldn't try to conduct neurological examinations on yourself. It took me 5 years of study at med school to learn how to do this stuff. The likelihood of you being able to reliably test yourself is pretty low I'd say. I'd ignore what you've found or, at worst, get a...

Yep - I get these too between the index finger and thumb, exactly as you describe.Happens to me intermittently RegardsSimon

Sounds like you are going great guns... keep up the good work!RegardsSimon

Ouch! I think Jennifer was just trying to reasure someone about palmaris brevis spasm which is nothing to do with BFS or ALS.RegardsSimon

Hi MonicaSorry to hear you are having a flare up. In about two weeks I will be marking my two year BFS anniversary. I no longer worry like I used to but I thought I'd let you know that whenever my hands play up I do still get a bit of a fright. I think this is because, unlike twitches under your...