Hi all!
You probably don't remember me as I haven't been around in a while but I joined in July 2003 after at least 6 months, maybe more of CONSTANT calf twitching (right calf) and roaming twitches elsewhere.
I just want to be a voice of encouragement. I still half 24/7 calf twitches. They...
Peg:
Yeah, I feel bad saying it but I am glad there is another 24/7 calf twitcher out there. Nope, never had it go away for more than 5 minutes in the last year. Just saw my neuro again Monday. BFS. I guess that's the good news.
Amy_twitch: Thank you for the nice words. I haven't tried...
Congrats! No meds for me. Never have taken any for BFS. You'll be fine with so much to look forward to! Ease off the meds just like you plan and then concentrate on the little bundle. You'll do great.
Peg! Hi! You are describing my symptoms EXACTLY which is always a bit of a relief to hear since I never seem to find anyone with an exact match and that keeps my mind active sometimes. I have HUGE and CONSTANT calf twitches and have had calf twitches for about 2 years now. 2 normal EMG's. 2...
Hi everyone! I hope you are all doing well. I just thought I would check in and give you all an update. Last I was here I had my second EMG and NCV (one year apart from the last time). Both normal (told I have BFS) but I still had constant twitching in my right calf with major cramping. In...
I get those twitches all the time-every muscle in legs & elsewhere. Some areas are worse than others-my left side has always twitched the most. Don't worry! When they say spreading they don't mean twitches skiping around like you describe.
My knees started popping right after I noticed my calves twtiching. ALso have stiffness in the knees. My calves twitch 24/7. Don't know if this is all related but thought you should know you are not alone in the popping. Every once in a while I have other pops but mostly the knees. I think...
My knees started popping right after I noticed my calves twtiching. ALso have stiffness in the knees. My calves twitch 24/7. Don't know if this is all related but thought you should know you are not alone in the popping. Every once in a while I have other pops but mostly the knees. I think...
Sleep does wonders. Getting a good amount of sleep not only keeps you healthy but there is no way you can worry whilst you sleep. It's waking that causes some trouble. When I really notice the twitching I move around and do something like walk to take my mind off of it. Busy and active, like...
For about the last 2 months I have really noticed a lot of stiffness in my legs. I twitch mostly in my calves so maybe that is why but it is really bothering me. For the record, I am 38 so maybe it's age or something but it is really getting worse. I notice when I stand up from sitting a...
Sandra,
Weakness and atrophy can apparantly start in any muscle, but usually in the hands or feet. Bulbar presentation is very rare. I think it would be very rare for it to start in the thigh, and with your clean EMG and absence of weakness, I definetly agree with Lisa in that you have...
Really you are all correct. It just depends on where you are at the moment. I hope I wasn't a downer with my little excerpt. I just wanted Uber to know I could relate.
I guess when I figured out the twitching was not life threatening it really made me admire those folks that handle trajedy...
Is it true that in "most" cases it starts in the foot or hand or bulbar?
I've been being a pain in the @@@ w/ all my atrophy questions, but please bare w/ me...
Wouldn't it be unusual to start in a thigh and to start after 5 mos of twitching and a clean emg (still keep thinking maybe I got it...
Uber,
I can relate. They tell me at church God doesn't give you anything you cannot handle. I do believe that. Well, I'll tell you one thing. I can't handle anything and hope I don't improve so much that I can handle anything because I would surely be crushed. You hear stories of horror...