Recent content by royboan

I have been taking neurontin for over a year now. I take it as needed, but at this point as needed is about every day. I think some on the board have taken it for years. It helps the pain for sure. Does not do much for the twiches. It can make you feel a little dopey at times. :)

Thats great news. Did they give you a number or just tell you negative? Mine came back boardline at 145. Less then 100 was normal. :cool:

My dr ordered a doppler ultrasound with a TOS waveform.That is how he found out I have TOS. Maybe you should try that test it was painless & only took about an hour.

My lips twich on a weekly basis. If you look you can see it move. It is not a sign of anything worse than the other twiches. I was told by my doctor not to worry about it. It is however very annoying. :mad:

Hello, I was recently diagnosed with Thoracic Outlet Syndrome in addition to neuromyotonia. I wanted to see if anyone else has been diagnosed with this syndrome? And if you have what works best to control the symptoms as far a exercise or medication? My doctor suggestion PT however I am to...

I guess I should have asked more questions! He did tell me that the drug effect muscles, your heart being a muscle also (Duh,like I did not already know that). That was about it. He did however say that if it was going to work I would know in two weeks. If it did not work for the twitches he...

I went to the neuro this week and he gave me a new prescription to try. It is Mexiletine (used to treat abnormal heartbeats). He said to take it one a day for a week, then start taking two a day for the next week. He seemed to think in two weeks time I would know if it was going to stop the...

Yes, I have experienced dizziness quite often. I may have a few bad days, then return to normal for a few weeks just to get dizzy again for a few days. I have not been able to attribute it to anything. Some medicane will cause dizziness, however I will have dizzy spells even when I am not on...

Hi, I am a new member to this web site. I have been suffering with symptoms for over a year now. My doctor ordered the paraneoplastic blood work & the TR antibodies came back borderline. Waiting to see the oncologist. At this time I am taking 100 mg of carbatrol twice daily & sometimes...