Recent content by lyhelen

1. I believe my doctor told me about 10-12 days. 2. 99.9% of the time, yes. I like those odds, so should you.3. Many doctors speak very medically. If you're looking for comfort, these are the last people you should probably talk to. Doctors are always cautiously optimistic. After I had my EMG...

Thanks for the post! It brought an ear to ear smile to my face.

I remember reading somewhere that athletes are more susceptible to ALS. Our ancestors had different lives than us. Although their physical work was arguably much harder, the stress we put on ourselves to meet up to the status quo is incredible significant. We are no longer content with having...

From my own personal experience, I was an avid runner before BFS. I pushed myself way too much and beyond my own personal limits often. Then this hit. I still work out; however, because of fatigue, I am limited to walking on the treadmill. I believe that exercise over-exertion definitely plays a...

I never have any periods where I feel like I have to sneeze and I can't. I imagine that must be a dreadful feeling. When I do sneeze, I often have 15-30 seconds of some pretty excruciating pain throughout my entire body. I've been told that this may be the onset of arthritis. I think you posted...

How many of you get these sensations?I get the buzzing symptoms. If so, when and where do you feel them?Feet, arms, hands. What have your docs said regarding this?The doctors, for the most part, have been clueless. My neurologist, however, who is very good, said that it probably goes hand in...

I just saw a Neurologist out of Northwestern in Chicago. "Twitching is not a symptom of MS."

I've noticed several people on the board talk about exercise and it seems a bunch of us exercised regularly before BFS and/or with BFS. I was wondering, how many people fall into this category? I am wondering if BFS may be caused by some sort of over exertion. Before I had BFS, I worked out way...

I have actually heard of myokymia. This whole BFS, started with eye twitching for me. My first doctor visit was to an eye doctor who told me I had conjuctivitis. I took an antibiotic that only made my eye worse. I decided to pony up the money and went to an eye doctor in town. She was looking...

Another thing you can do is talk to your pastor, hug your kids, call your mom and dad and tell them you love them. I never felt so good as when I brought my wife and daughter to the beach this past summer. Read scripture. Do beautiful things and most importantly, make it your life's goal to live...

I am currently battling a bout of muscle weakness. The way I can describe it is that my arms and legs feel like jello. The good thing is that these bouts come and go. They are not permanent. Talk to people you can trust, as much as possible. It helps me. Keep the faith.

I do have twitching in the calves; but, not all that often. Most of my twitching occurs on the back of my arms, my thighs, my back, and my right eye. Actually, 43RichyThe43rd mentioned that his eye started to twitch. My neuro told me this is actually one of the best signs to have as the eyes are...

That really sounds a lot like sleep apnea. I have been diagnosed with sleep apnea, as well. Sleep apnea, in rare cases, can also cause twitching and definitely causes fatigue. It's worth getting checked out. Sleep apnea can lead to a lot of other illnesses including heart conditions and...

Linda,I sent you a PM. Dr. Aggarwal is a good neuro. You can visit his site at neurometriks.com. If you tell him that you twitch, he will give you an EMG. He is the only doctor I have met, that has extensive knowledge on these diseases and he is a very nice man, very easy to talk to and be...

Does anyone know of any good BFS doctors? I would like to see a doctor who has some knowledge of BFS. I have been told by my GP, that BFS is nothing more than an anxiety induced illness. This, of course, I highly doubt; but, was wondering if anyone knew of any good doctors, in my area, and...