Recent content by jacksackers

  1. J

    Welcome Back - Twitching Struggles

    Hey there,I can tell you that cold weather does make my BFS worse, which is probably why I was so freaked out last winter. Now I'm prepared for it. But then again, a nice summer didn't make it go away so??? I don't know if your doctors have clinically diagnosed weakness in you or not. I can...
  2. J

    Welcome Home! Twitching Since September 07

    Hi,To answer your question, I have been "released" from the doctor, so to speak. I had visited many doctors from a neuro, to an orthopedic, to a psychiatrist...not a single one is concerned any longer about ALS. And as I said in my post, my neurologist said the twitching will probably never...
  3. J

    Welcome Home! Twitching Since September 07

    Hi Everyone,Thought I would pop by after a long absence from this site, which was a lifesaver when I needed it. I have been officially twitching (official with a doctor's visit) since September 07, although I think I really started twitching a couple of months before that. It started in my...
  4. J

    Overcoming Fear of ALS: 9 Months

    Hi,This month is my two year anniversary of twitching. I was a basket case not from the minute I googled, not when my body exploded with twitching, but when I called a neurologist to make an appointment and explained to the assistant what was going on, and was called back within 5 minutes and...
  5. J

    Twitching Feet: Is It Felt or Seen?

    I have foot twitches that are invisible and some I can see...very normal. I used to get the lightening bolt feeling down one side of my face. Weird - but haven't had it in a year.
  6. J

    Difference Between Physiological Myoclonus and BFS?

    I started twitching two years ago. The jerking, which I refer to as flinching, started at the same time. I'm not asleep or even about to fall asleep (am somewhat of an insomniac), but I am always in bed or laying down. Maybe my brain is trying to fall asleep but my body won't. In any case...
  7. J

    Jaw Pain & Tongue Twitching?

    Hi there,Don't worry about tongue twitching. That's where mine started. It went on for several months before it dawned on me that my tongue was twitching every day, always late at night. I thought all kinds of things - could it be a weird kind of seizure due to staring at the computer late at...
  8. J

    Random Twitches Everywhere - No Order

    have them often along with prickly sensations and they are all over my body.
  9. J

    Viral Infection and BFS Symptoms

    Hi everyone,#1. I never get sick so my twitching didn't follow any illness, viral or bacterial.#2. I'm probably the opposite of a hypochondriac in that I don't go to the doctor even when I should.#3. My twitching began after six months of extreme stress due to, well, life!I didn't think a...
  10. J

    Twitching, Pins & Needles, Numbness, Pain?

    Hi, I feel like I have hyper-sensitive skin, too. Sometimes when someone touches me and I'm not expecting it, my entire body jerks. I've gotten some strange looks because of it. It's not that I'm startled at all, it's just a reaction - strange. Ally
  11. J

    Should I Go To Neuro Follow Up?

    Hi, I just got back from my 3-month neuro check up. There have been absolutely no changes in me except that I am MUCH stronger than I was 3 months ago due to my diligent gym visits. ;) After expressing my fears again, my neuro offered an EMG to ease my mind even though she does not think I...
  12. J

    Classic BFS in Cat: Symptom?

    How funny. There was a long article in our local newspaper today about animals and anxiety, and the medications that can be given to them to reduce it. I just thought, how about walking your dog instead? Anyway, there were 10 symptoms of animal anxiety listed, everything from not eating, to...
  13. J

    20 Years of Medication: Twitching Now?

    Hi, I'm glad it's working for you, but I have been on it for 20 years for migraines and just started twitching 3 months ago, so... And I was thinking my twitching could be because I've taken it all these years. I was going to ask my neuro at my next appointment if I could just go off it and...
  14. J

    20 Years of Medication: Twitching Now?

    Hi, I'm glad it's working for you, but I have been on it for 20 years for migraines and just started twitching 3 months ago, so... And I was thinking my twitching could be because I've taken it all these years. I was going to ask my neuro at my next appointment if I could just go off it and...
  15. J

    Thanks to All for Support

    OK, I'm not going to join this debate other than to say that prior to August 2007 I was among the healthiest people I know (with the exception of migraines, my personal cross to bear). I don't even have a primary care physician because I haven't been to a doctor in years for anything other than...
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