Recent content by Diane1987

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    Running to Relief Grief, ALS, Depression

    Thanks for checking in and I am glad to see that things are getting better exercise wise :) All the best!Volkmar
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    2nd year anniversary

    Link to my 1st year anniversary: Well, happy anniversary to me. Another year gone by. I got some ear clicking and the vibration in my right leg has flared up recently. On the other hand I hardly twitch any more and the burning sensations that started it all have completely disappeared. I saw an...
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    1st year anniversary

    Just wanted to check in with a positive post. About a year ago the whole mess started. Burning, buzzing, twitching. I checked myself into hospitals twice and I got me a private neuro whom I saw about every other week for a physical. EMG in October (clean) with the option to come back in a couple...
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    Questions for Johns Hopkins Neuropathy Appt?

    Good news indeed!Thanks for taking the time and summing everything up.
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    Symptoms of Developing Fasics?

    A burning sensation on the back of my hands. Then all over my body - come and go, lasting minutes to some hours. The twitching started weeks adter that. But I may have overlooked it. I was certain I had MS.
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    Leg Numbness & Diabetes Worries

    Happens to me as well. I think the MS fear is irrational because numbness from MS would not be triggered by sitting and it wouldn't come and go but persist for days. I am not an expert - so take everything i say with a grain of salt. Maybe Gracely can give her opinon.On the other hand - I have...
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    Anxiety and Daily Twitches: Help Needed

    You will be fine. Even or especially in the light of recent events. It shows how terrible the dreaded disease is. How fast there is a progression until a point where you know there is something wrong. I will tell you something. I was in a monastery over the weekend for meditation. At one point I...
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    Living and Well: Staying Off of Fear

    Thanks for the update!I am closing in on the 2 year mark myself with similar symptoms (the cell phone thing) so I especially appreciate that you took the time and gave an update!Take care and good luck for your professional future!
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    5 Years to the Day

    Thanks for checking in!Take care
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    Progressing from ALS Suspicion

    I was very sorry to read this initial dx although I was sure that you would be cleared at one point. The way you were and are treated by the doctors and nurses takes my breath away and makes me incredibly angry. I hope everything works out for you. All the best!Volkmar
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    New Symptom: Ear Clicking

    I got a new symptom - ear clicking. This has been going on for about a week now. It's not really super annoying because it's a rather "silent" thing - I only notice it when I concentrate on it. Annoying nevertheless. I googled around a little (I know, I shouldn't do that) and found the...
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    Common Bodybuilding Anxiety

    :D) Thanks guys for posting this. My favorite quote is: "Looks kinda cool actually but it is getting annoying."
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    New Buzzing Sensation in Leg

    I have had the same thing (still do from time to time). For me it presented in my right foot. I had it every day for weeks. A buzzing, rhythmic vibrating feeling. I couldn't see it, nor feel it from the outside. Exercise seemed to trigger it or make it worse. But it gradually disappeared - I...
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    Annual Phone Call with Aunt: Worrisome Words

    Hi there!When I was wandering through the archives I stumpled about your christmas call to your aunt last year. Sorry that you had to go through the same lecture this year as well. Lesson learned: Don't talk to people who are no experts in this subject about your fears, concerns, symptoms. I had...
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    Body-wide Neuropathic Symptoms - Help!

    I get the burning all over my body. Did you get diagnosed with neuropathy? I ask because I suggested that to my neurologist and she brushed it away based on my sympthoms.
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