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Thanks for checking in and I am glad to see that things are getting better exercise wise :) All the best!Volkmar

Link to my 1st year anniversary: Well, happy anniversary to me. Another year gone by. I got some ear clicking and the vibration in my right leg has flared up recently. On the other hand I hardly twitch any more and the burning sensations that started it all have completely disappeared. I saw an...

Just wanted to check in with a positive post. About a year ago the whole mess started. Burning, buzzing, twitching. I checked myself into hospitals twice and I got me a private neuro whom I saw about every other week for a physical. EMG in October (clean) with the option to come back in a couple...

Good news indeed!Thanks for taking the time and summing everything up.

A burning sensation on the back of my hands. Then all over my body - come and go, lasting minutes to some hours. The twitching started weeks adter that. But I may have overlooked it. I was certain I had MS.

Happens to me as well. I think the MS fear is irrational because numbness from MS would not be triggered by sitting and it wouldn't come and go but persist for days. I am not an expert - so take everything i say with a grain of salt. Maybe Gracely can give her opinon.On the other hand - I have...

You will be fine. Even or especially in the light of recent events. It shows how terrible the dreaded disease is. How fast there is a progression until a point where you know there is something wrong. I will tell you something. I was in a monastery over the weekend for meditation. At one point I...

Thanks for the update!I am closing in on the 2 year mark myself with similar symptoms (the cell phone thing) so I especially appreciate that you took the time and gave an update!Take care and good luck for your professional future!

Thanks for checking in!Take care

I was very sorry to read this initial dx although I was sure that you would be cleared at one point. The way you were and are treated by the doctors and nurses takes my breath away and makes me incredibly angry. I hope everything works out for you. All the best!Volkmar

I got a new symptom - ear clicking. This has been going on for about a week now. It's not really super annoying because it's a rather "silent" thing - I only notice it when I concentrate on it. Annoying nevertheless. I googled around a little (I know, I shouldn't do that) and found the...

:D) Thanks guys for posting this. My favorite quote is: "Looks kinda cool actually but it is getting annoying."

I have had the same thing (still do from time to time). For me it presented in my right foot. I had it every day for weeks. A buzzing, rhythmic vibrating feeling. I couldn't see it, nor feel it from the outside. Exercise seemed to trigger it or make it worse. But it gradually disappeared - I...

Hi there!When I was wandering through the archives I stumpled about your christmas call to your aunt last year. Sorry that you had to go through the same lecture this year as well. Lesson learned: Don't talk to people who are no experts in this subject about your fears, concerns, symptoms. I had...

I get the burning all over my body. Did you get diagnosed with neuropathy? I ask because I suggested that to my neurologist and she brushed it away based on my sympthoms.

Thanks for stopping by and telling us. At the height of my own fear some months ago it was posts like these in the archives who kept me sane. Take care!

Great post!Thanks for taking the time and writing everything down. This will help so many people in the months and probably years to come who are going to search for these kinds of symptoms. I think postings like these have helped me so much in my darkest hours when I first got here. My main...

Thanks for this great post! Puts things in perspective...

If fasting decreases your twitching take a look at a ketogenic diet which comes close but is of course a little mire feasibleon the long run. I am on a rather strict paleo diet as well but I already was more or less paleo when all of this started. I just got a lot more disciplined, especially...

Interesting read indeed. Thanks for posting this.I have read that on here before but it always strikes me that in the good old times only young people in health care connected twitches with ALS and freaked out over it. Thanks to the internet we all can panic about it now.