Recent content by boysGrandmaof3boys

I haven't been on this site for a long time...but when I needed it, it was a God send for me. --- I started having symptoms of BFS about three years ago. Of course, I googled twitches and about hit the floor when I read everything that could possibly be wrong with me. I truly, truly thought...

I have thought that too. I am wondering if it may be termite spray. I had termites in my home and my BFS started soon after the house was treated. The kids obviously live in the same house. ??? It's just odd.

I've had symptoms of BFS for the past 16 months now. I'm not new to this board, and I haven't posted in awhile, but I thought I'd share something... my 12 year old son and 10 year old daughter have been experiencing twitching for the past few months too. They basically knew nothing of my...

I've had symptoms of BFS for the past 16 months now. I'm not new to this board, and I haven't posted in awhile, but I thought I'd share something... my 12 year old son and 10 year old daughter have been experiencing twitching for the past few months too. They basically knew nothing of my...

Mark is right, 4 weeks is definitely NOT too early. My neuro told me this, as well as my primary care physician. *** twitching is caused from muscles dying, which causes them to twitch. If you had ***, number one you would be very weak. An EMG can definitely pick up anything sinister, even...

I also get mouth twitches...I think a lot of us do. Hang in there!!

I tried the Gatorade for twitches...no help at all.

I have reached my one year anniversary!! A year ago I thought that the world was coming to an end. I had horrible twitching from head to toe. I thought that I definitely had ALS and I thought I was definitely going to die. I rehearsed speeches to my three children in my head...what would I...

I found the EMG to be unpleasant, but it certainly wasn't all that painful. I've felt much worse pain in my life...child birth being one, breaking an arm being another, among other things. The "pain" was worth it to me (the peace of mind). I was told by my neuro that it is never too early to...

Hi there,You are just like so many of us and it sounds like nothing more than BFS. You are ok...the tests you had proved that. It is hard to stay calm, but it WILL get better with time. I've been twitching for almost a year now (at the end of April it will be one year) and although I'm still...

My neuro said the testing is never done "too early". Twitching in ALS would be a sign of the nerves dying...if you are having any twitching at all the EMG/NCS would pick up a problem and he said that if you have a negative EMG, you DON'T have als. You are totally fine in my opinion. Take a...

I've had friends say the same thing...like it's no big deal at all. Of course, there are those "other" friends that look at me like I'm nuts. But I've had 2 friends tell me that "oh yeah...I get that too." LOL

Sounds like BFS to me. Although I don't have the aches, I have or have had, everything else you describe. The buzzing and twitching are common to all of us here. I'm not looking at your initial post but I think you said you have an emg scheduled for tomorrow. If that's the case..I know it...

Aaaaaaaaaarghhhhhhh! :mad: That's so frustrating. It's happened to me before too, and they just don't seem to understand how it affects someone that is waiting on pins and needles to see them. It will all be ok though...just hang in there. Here's to scheduling a new appt as early as...

Happens to me all the time too! Especially after jogging or doing something strenuous.