Recent content by AllGoodHere

  1. A

    Welcome to BFS - A Thanksgiving Message

    Stayingstrong, Awwh :confused: thanks right back at you. So glad you could find some help from the forum, some of us (me at least) wonder about it, if it is better to share some of it or just stuff it, but your post helps to show it does help some. No more stalking OK? Jump in there once in...
  2. A

    Welcome Back - Living with BFS

    Hi Simon - you sound good (worrying about mouth tastes is ramped down compared to much of what we see here!) I never had this except for after the dentist but I see it (smell/taste) on my hubby occasionally - especially when he has gone a while without eating or is a bit dehydrated - funny...
  3. A

    Welcome to Our Support Group

    Really, we are the sum of our parts working together - it's just that it is hard to find a doc that can see you that way. If our bodies were cars we'd have to go to one shop for the drive train, one for fuel systems, another for brakes, etc. and would spend months just getting the oil, brakes...
  4. A

    Welcome to Our Support Group

    I was diagnosed with benign cramp fasciculation syndrome. My response was .... huh? At the time I didn't care much as my symptoms weren't that bad and he said it would come and go and may go away. NOT. That was almost 2 years ago. I go back this week to see if he wants to update that...
  5. A

    Welcome to the Site!

    Yes to the knee problems - for years, on and off. If you can get a referral, go to a physical therapist for your knee. I say a therapist rather than an orthopedist because most orthopedists focus on surgical interventions. Chances are that your muscles in your quad are pulling (unequally) on...
  6. A

    Return of BFS Symptoms

    I'm saying that the healthy lifestyle pulled me through to the point of no longer having most symptoms but when I had a reoccurrence years later it was corrected by taking B12. The reoccurrence was more towards fatigue but the other symptoms were there to a lesser degree. I have no idea if the...
  7. A

    Return of BFS Symptoms

    Hi All - haven't been here in a long time as I'm not a BFS sufferer anymore. Long story. But I came back because a half year ago I started getting symptoms again; cramping, some fasics, tiredness, lethargy, weird twinges, and easily hurt (sprains, muscle pulls, etc from tight areas), mind fog...
  8. A

    Nine Years of Benign Fascs: Reflections from Croatia

    Yah! We keep on keepin on. It's my 8th year - 7 since my Dx. Had some new developments and thought of all my fellow weirdos :LOL: here and decided to see who was still around so glad you old-timers decided to post. Normally, my symptoms are mostly gone, not entirely but enough that I can...
  9. A

    Histamine Intolerance: Diet and Relief

    Glad to hear that you are having success. Going to a low histamine diet also helped me when my symptoms were bad - used info at this site: You don't have to stop drinking - just stay away from drinks that are high in histamines - aged liquors have the most....vodka has the least. Coffee in...
  10. A

    Finding a Solution for BFS

    Haven't been here in a while and dropping by saw this post about muscle relaxers. I have some experience with these so here goes. My neuro first gave me Flexeril for muscle spasms - it seemed to make me just as sleepy as it did calm my muscles. Then we tried Amrix, a time release variation of...
  11. A

    Diet Wise: Is One Diet Right for Everyone?

    Well, for both of my kids when they were very young, it really cleared up some problems by doing the elimination diet. My daughter had a high sensitivity to red food dye (she still does to a lesser extent - haha no red koolaid shots) and my son to citrus oil. Good thing they were too young to...
  12. A

    Exploring the Role of Microbes in CFS

    It seems that the liver is a very important organ in Chinese medicine regardless of the complaint. I've been to acupuncturists and also have taken the herbs, etc - it varies for me what the results were but I don't discount the value. Look at it rationally (and I think Chinese medicine is...
  13. A

    Diet Wise: Is One Diet Right for Everyone?

    ycb2002y2 - the elimination diet was very helpful when we were trying to determine sensitivities in my young children. It isn't easy to do, so many don't follow through to conclusion, but it certainly saved us a lot of grief. In one case what was being thought of as a developmental problem was...
  14. A

    Exploring the Role of Microbes in CFS

    AcuDocMed11 - Thanks so much for posting this interview. :D) Then possibly, it is not coincidence that my symptoms subsided when I went on a very low fat diet and then improved more when I started increasing soluble fiber to help lower cholesterol. The soluble fiber lowers visceral fat (and...
  15. A

    Persistent Bilateral Foot Pain

    In general I have found that being static, rather than moving, increases symptoms. Even now, when I have so few symptoms compared to years ago, if I hold a position without moving, I will sometimes get cramps. Especially if in a cold environment...or in a tense situation. It makes sense...
Back
Top