Words of Comfort for Newbie

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AmandaKayMika

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Hi everybody,First off, please, please forgive me if I'm posting this in the wrong place. I'm new and just looking for some words of comfort...Background: 27 year old Caucasian female. A little overweight, but otherwise healthy. I take birth control regularly (microgestin fe 120, to be exact) and occasionally the nasal spray FloNase for allergies. I try to squeeze in 20-30 minute walks a few times a week, especially because I work in an office and my job is most sedentary. Don't smoke, occasionally drink.About two weeks ago, I started experiencing painless muscle twitching in my left calf. It has since spread to my arms, shoulders, thighs, hips and buttocks, although still mostly concentrated in my calf. I went to see a doctor about it and he suggested that it might be dehydration and to up my water intake to 64 oz a day, plus a Gatorade. He also suggested doing regular stretching and using a heating pad. Lastly, he also had me do some bloodwork to test my electrolytes, calcium, magnesium levels and my kidneys, all of which came back normal. Following his advice seems to have lessened the frequency of the twitching, but it's definitely still there, and it's driving me crazy. I e-mailed my primary care physician about it and she said she agreed with the first doctor's diagnosis, and also said stress and anxiety might be a reason behind the twitching. (For the record, I am a VERY anxious person, so when something like this happens, I can't help but agonize over it. Admittedly, I don't notice the twitching as much if I'm walking around or actively involved in something that keeps me distracted.)Does this sound like common symptoms of BFS, or should I be concerned that it's something else? Neither doc seemed terribly concerned about it. My primary doc said the only other thing she can think of is my thyroid and recommended that I come in and get bloodwork done for that if my symptoms don't subside within the next few days. What do you all think? I'm going crazy thinking it's something worse when it likely isn't...
 
Hello and welocme...sounds creepy dont it :LOL: ...To answer your question "YES" sounds straight up like BFS...You can put the time in and see a neuro and have unnecessary testing done, but I can pretty much assure you, that you will end up here with the rest of us...Some have the tests just to make themselves feel better, but others choose not to stress themselves out with all the testing and waiting..and it usually turns out to all be for nothing.Its a personal choice, but yes, you absolutely sound like a BFSer to me. I'm sure others will chime in and agree.Take care and breath easy..you sound like you will fit right in here.Robynn :D)
 
It doesnt surprise me that your doctors havnt mentioned BFS, its a little like having Fibromyalgia 30 yrs ago. But the symptoms should start to wane for you as soon as you get the anxiety under control and dont do too much reading...trust us all on that one.Post if you have any more questions or just want some support.Take careRobynn :D)
 
They do not mention it because most doc's just pass it off as anxiety. Which I beleive has alot to do with it myself, as most everyone on here admits to being anxious. My neauro DX'd me with Benign Fasiculations, said the syndrome part is all anxiety...lolYou sound alot like the rest of us, try to not worry and listen to the above post's. Do not research, way to much bad information out there. It could also very well be your thyroid too, my doc said he would have bet money on mine being the cause. But mine was good. So who knows, but it's benign and thats all that matters.<--- Remember this part.Glad you found this place, hang in there and the anxiety will ease up soon.... :D)
 
Hi and welcome, yes I agree with everyone else...bfs...work on your anxiety that's the key to all of this...easier said than done I know, I'm a really anxious person too....but keep busy, it helps ....shannon
 
nkash, Yes. In fact, there is another thread on these boards I just commented on talking about this. Yesterday was a real bad day for me. My shins and calves on both sides were going non stop along with my scalp, temple and jaw area of my face...NONstop all while the rest of my body from head to toe would twitch at random, (one here, then there, then on to somewhere else) Today however... no area is going constantly, just have the random twitches today and they are very mild. For me I seem to have one good day then the next bad, or a few good days and a few bad, and so on. It's constantly changing, but there are good days and bad days.Tanya
 
Hi Nkash, Everyday is different in the world of bfs....somedays i twitch alll day all over, others it's just a few random ones, apart from my feet that go constantly, also depends on if I'm anxious or busy, the more busy I am the less I notice them.....remember there is no normal for bfs, just what we have....shannon
 
Just as everyone else has said, what you're experiencing sounds like classic BFS. My dance with it began EXACTLY the same way, although I also have cramping to go along with the twitches. I'm pretty new to it, having experienced my first twitches in August of 2010. And, yes, it's completely normal to have good days and not so good days. I've found a sense of humor to be my best defense on the not so good days. I'm glad you found the forums; it's a good place to be. Becky
 
I’m glad to see you are getting the anxiety under control and seeing good results. By general rule, reducing overall anxiety will eventually result in a decrease in symptoms. HOWEVER, keep in mind that BFS is unpredictable in many ways and you will have days when you feel completely calm yet your symptoms seem out of control. When those days come be ready. Remember that BFS is unpredictable, and try to resist the temptation to think you are dealing with “something else” just because your twitching increases when you would expect the opposite.
 

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