Wondering What BFS Does to Us

[forestrain]

Hello All,After nearly 3 years of BFS, I have long since released the fear of the dreaded **S. However, I think about my future a lot. While BFS is benign, I have to wonder what this condition is doing to our bodies as the years roll on. I've been reading a lot about free radicals and a body's slow deterioration at the cellular level; why some bodies develop diseases and others don't. I know a million different factors come into play with any one person's health, but the question I constantly ask myself: Is BFS doing any long-term damage to my system and cells? I'd like to hear any thoughts you have on that premise and whether your doctors have ever addressed the question. I mean, clearly something is wrong with our nervous systems; should we be in a hurry to cure this condition, or just be thankful it's not life threatening--right now--and try to forget about it? I think it's a question we all have to consider, especially those already suffering from this for multiple years with no medical answers. Thanks for your feedback.

 

[AllGoodHere]

Hmmmmm. I've thought about this too but usually when I'm super-symtomatic and in pain as I know that any kind of stress is badbadbad for us all. Then I realize, hey!! I could get in a car accident tomorrow and the chances of that are probably greater than me pnhe-ing into oblivion. And I don't agree that something is clearly wrong with our nervous systems - surely something is messing with our nervous systems but the neuros don't know what is causing this and they are neurologists as in people who study and contemplate the human nervous system every single day. They have found no cause just effect. So maybe it's our metabolism, or the stress of too many people on the planet, or poor electrical-muscular connections due to (pick one): mutated viruses hiding in our bodies, irresponsible behavior, drinking sugar-free cola, pharmaceuticals, alien interference, OH, OK, I need some help here! where are the writers when you need them?I'm more of a generator rather than a degenerator - especially when the pnhe gives me a break! I mean after all, the positive side of this is that my muscles, getting more of a work-out that most people's, are in better shape and I am basically not having to fight the battle of the bulge as hard as some others. I am more aware of my health than I was beforehand and take better care, and I am more grateful for what I do have after, for that short period of time between when I first visited the neuro and the time when he did the tests to prove me OK, thinking I might have had a progressive illness. It has taught me new ways of dealing with life issues, stress, and obnoxious people. And then - most importantly - it has taught me not to waste time on unimportant crap as you never know what life is going to throw at you. Maybe we are all regenerating.

 

[paucek.sheldon1]

I am been on a gentle slide downhill since my 18th birthday.Wish I could go back to that young man, cuff him aside the head, and tell him to enjoy every minute because life is short.I expect things to continue to get worse from here. Such seems to be life. My end will be the same as my fore-fathers.Personally I am looking forward to getting a new body. I only hope my new one is as handsome as I am now )

 

[BarbiePetals]

Everything in our body degenerates. Our eyes go bad, our hearing gets bad, our bones get brittle... as we age lots of things are going to go wrong with us. I specifically asked my neuro if this progresses into anything and he said "no". I also spent some time on the Issacs Syndrome message board just to see what those people delt with since BFS is simular. Some of those people have been living with Issacs for many, many years and they still lead normal lives. I wouldn't worry about BFS causing too many problems down the road.Leslie

 

[AllGoodHere]

I was going to say oh Pooh to all these sad thoughts but you guys are more like Eeyore. We are traveling along in the stream of life - don't get stuck in a pothole! Adapt and survive if you think that is overly cute. It can be so hard to be optimistic around here (even when there is good cause)!

 

[LaurentHCH]

i was asking myself too about this. if bfs is autoimmunerelated, yes we can expect further autoimmune deseases down the road...bfs is already my third one. i guess having several of these is not too healthy as they can provocate cancer. but hey they CAN, means not that they DO. a healthy lifestyle and a recovery of my bad digestion how i try toavoid this.