When Will This Product Be Out?

[TatsuDragon15]

here is the link... anyone know when it will be out on the market?

 

[twinTwosome]

I've often wondered if there were a simple blood test to answer the question definitively, would I want it? At the very least I hope it helps researchers identify more effective treatments, maybe even an eventual cure.Would we all be able to relax if this disease were curable? For me, that's a definite yes!

 

[bfhopeful2]

You can check for CPK levels, people with ALS usually have about 6 times the normal limit. But even if it comes back positive or eleveated I should say doesn't mean you have ALS. But it coming back in normal range should help alleviate anxiety some.

 

[Krackersones]

I will definitely ask my neurologist who does research about this test. It sounds like it is preliminary but in the works so who knows if and when it will ever be available. Just a warning about the link, there is lots of other information on ALS that may be anxiety provoking for many. I read a lot of it and it did raise my anxiety. But I have to admit I learned nothing that I did not already really know but rather was just reminded of things I wish were not true. Krackersones

 

[LennyWang]

This is definitely a great news. Imagine that we can ease our minds by just having our blood work done... On a second thought after reading the report....especially after this paragraph: "The test involves monitoring the concentration of a panel of proteins in blood serum followed by a discriminant biostatistical analysis of the proteins ("biomarkers"), to distinguish between subjects with ALS and those with other neurological disorders (ALS-like) having clinical symptoms resembling them. " I doubt that the insurance company would like to cover it, because this test cannot become a diagnostic test (meaning test that makes a definite clear cut on whether you have or do not have a certain disease).Biostatistical analysis are generally not considered as a test of exclusion, it only gives you a numeric number of possibility/chances of how likely you have or don't have a disease. An example would be the test that we do for pregnant women to screen for possible fetal down-syndromes. I imagine that if the power of this ALS biostatistical analysis can be on par of the down-syndrome test, it will become a standard test. Before then, we will need more samples (600 patients are far from enough) to make the ALS test statistically powerful enough.