What's Going On With Me?

[MyAwesomeName]

You know I sit here everyday and ask what could this be? And so far everything normal, blood work normal, emg normal. I ask myself what was going on before this? Well I had not exercised in so long I was so tiny to begin with, and then a few pounds started to creep up on me, then I worked out like crazy for about a week so sore hardly could walk, then march was my last normal period sorry guys, no not pregnant, so then I say to myself maybe hormonal, maybe worked out to hard for those few days and triggered something, then I had the twitch in my eye for about three weeks before this all started.And then the more horrifying issueof all als emg came back normal but we've all second guess the emg's and then I say to myself would I really want to knowif I had als, and if I did there is not a dam thing I could do about it anyway I would crwal up on the couch and be a basket case. I mean ther is no definate cause, and I feel like what comes next with all of this. I guess the uncertainty is killing me I feel like my muscles are just going to not work right they feel weird. Last night I was just about to fall a sleep and part of my body jerked hard and it scared the daylights out of me anybody know what that was sorry so long one Dr. says anxiety one says no you put 10 Drs. in room and ten different answers sorry having a bad time and no disrespect towards Drs. Just having a really bad time right now ,as all of you . Has any of you ever been to an auto immune Dr.? Has there ever been a link between hormones and bfs? Could really use some help only three months into this nightmare. Thank you to all you great people on this forum I really would be lost without all of your help Pam

 

[garymills]

Pam,

the night jerking thing is called myoclonic jerks i think. I've personally never experienced them, but many here have and they are benign. The anxiety is the key to your recovery, as we talked about on the phone, it will not stop your twitching, but it will make you feel ok with them.

If you need to talk, feel free to give me a call.

Take care,

Gary

 

[GinniferLynne]

Pam

I have experienced those jerks. I have had them on and off for years and years, even before the twitching began. Lot's of people of those. My husband even gets them from time to time.

I've been twitching for 14 mos. now. I KNOW what you are going through. I'm having twitches in my left calf today so bad, they are driving me nuts. I can feel them all!

Pam, my doctor has put me on a small dose of anti-depressent/anti-anxiety drug. It seems to help take the "edge" off. If it is hormonal, then the SSRI probably will help (lots of women take them for post partum depression). This pill doesn't make me sleepy or feel weird. Just helps "settle me down" a little bit (although my husband might disagree

Please, see your doctor and talk to him/her about your anxiety level and fears. Anxiety can be just as debilitating as any disease.

I hope you feel better soon.

Ginny

PS - There are a lot of different anti-depressants/anti-anxiety drugs out there, I'm sure your doctor will figure out which one is best for you.