I sat down to eat dinner recently (during the height of my ALS scare) and we started to watch a local news show (Boston) called "Chronicle". Now --- we NEVER watch this show, but, it was just starting as we were about to eat so we kept it on the channel.
Right away I knew what it was about when the reporter mentioned something like " .... then he was unable to turn the key to get into his house."
The show was about Steve Heywood -- an ALS patient in Mass. whose brother (Jamie) started ALS-TDF -- an organization created to find a cure for ALS.
The whole thing was creepy because I had been reading about Steve and ALS that same day.
The show was interesting -- but -- very very sad. Steve is now on a ventilator 24/7 and in the late-stages of the disease. Seeing him in his wheelchair unable to move anything but his eyes -- well -- it was all distressing.
It made me appreciate my own health -- for like 10 minutes -- and then I began obsessing that I have ALS again ..
Will it ever end?